“It’s alright to ask for help”: findings from a qualitative study exploring the information and support needs of family carers at the end of life

Source: BMC Palliative Care 2014, 13:22

Follow this link for the full-text article

Date of publication: April 2014

Publication type: Research article

In a nutshell: Family carers play an essential role in providing end-of-life care to their relatives but have been found to experience uncertainty and a lack of confidence in fulfilling their caregiving roles, prompting recent calls for educational or information based resources to be developed for carers. The authors carried out four focus groups with Clinical Nurse Specialists, healthcare assistants, former and current carers at a hospice in the UK, to explore the information and support needs of family carers. The results suggest  three domains which could underpin this type of intervention: developing knowledge and competence; facilitating preparedness; supporting role recognition and confidence building. It is recommended that an integrated information giving approach which addresses these domains by combining a resource pack for carers with a more explicit acknowledging role for health professionals. Together these could provide key information and also build confidence amongst family carers to ask for further support and advice as needed.

Length of publication: 10 pages

 

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