Source: International Journal of Palliative Nursing v.20(4), p179-86
Date of publication: April 2014
Publication type: Article
In a nutshell: This project aimed to explore and understand the experiences of the Sikh population of south east England when caring for a dying relative at home without support from Specialist Palliative Care (SPC). The results reports that five super-ordinate themes were identified: factors leading to the caring role, emotional effects of caring on the carer, impact of caring on the wider family, influence of health-care services, and religious and cultural influence. The most common emergent theme was lack of support from health professionals, which emerged from a lack of awareness of services. The article concludes that there is a need for health professionals to reach out to this population to increase awareness of and trust in the services that are available to support care at the end of life. However, an unwillingness to accept assistance may persist in some cases.
Length of publication: 8 pages
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