Court ruling not needed to withdraw care, judge says

October 2, 2017

Source: BBC 

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Date of publication: September 2017

Publication type: News Item

In a nutshell: A judge has ruled that legal permission will no longer be required to end care for patients in a permanent vegetative state if both doctors and relatives are in agreement and it is also in the best interests of the patient to withdraw nutrition.

Length of publication: 1 page


Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals

November 4, 2015

Source: BMC Palliative Care 2015, v.14:56

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Date of publication: November 2015

Publication type: Research article

In a nutshell: The objective of this study was to explore when professionals in long-term care settings consider a person with dementia in need of palliative care. The findings from this study suggest that professionals across Europe have different opinions regarding the time point when to consider a person with dementia in need of palliative care.

Length of publication:6 pages


The lived experiences of the Sikh population of south east England when caring for a dying relative at home

June 9, 2014

Source: International Journal of Palliative Nursing  v.20(4), p179-86

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Date of publication: April 2014

Publication type: Article

In a nutshell:  This project aimed to explore and understand the experiences of the Sikh population of south east England when caring for a dying relative at home without support from Specialist Palliative Care (SPC). The results reports that five super-ordinate themes were identified: factors leading to the caring role, emotional effects of caring on the carer, impact of caring on the wider family, influence of health-care services, and religious and cultural influence. The most common emergent theme was lack of support from health professionals, which emerged from a lack of awareness of services. The article concludes that there is a need for health professionals to reach out to this population to increase awareness of and trust in the services that are available to support care at the end of life. However, an unwillingness to accept assistance may persist in some cases.

Length of publication: 8 pages

Some important notes: This article is available in full text to all NHS Staff using Athens, for more information about accessing full text follow this link to find your local NHS Library


Dying at home: A qualitative study of the perspectives of older South Asians living in the United Kingdom

February 10, 2014

Source: Palliative Medicine 2014 v.28(3), p.264-272

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Date of publication: March 2014

Publication type: Article

In a nutshell: This article aims to explore beliefs, attitudes and expectations expressed by older South Asians living in East London about dying at home. Findings suggest that older people of South Asian ethnicity living in East London perceive home as more than a physical location for dying relatives. They make efforts to adhere, and also adapt, to important social and cultural values relating to death and dying as part of the wider challenge of living in an emigrant society.

Length of publication: 8 pages

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.


Homelessness and end of life care

July 1, 2013

Source: St. Mungo’s

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Date of publication: February 2013

Publication type: Resource pack

In a nutshell: The resource pack, called Homelessness and End of Life Care, has been created by homelessness charity St Mungo’s and Marie Curie Cancer Care, the UK’s leading end of life care charity. The pack pulls together tools, templates and relevant resources for staff working in homelessness organisations and with people who are homeless, enabling frontline staff to talk confidently about end of life issues with their service users as well as when working with health and social care professionals.

Length of publication: 80 pages

Acknowledgement: Marie Curie Cancer Care

New ‘Hospice at Home’ service will give more choice to patients coming to the end of their lives

July 23, 2012

Source: Norfolk Community and Health Care NHS Trust

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Date of publication: July 2012

Publication type: Website

In a nutshell: A new service in west Norfolk will mean patients who are coming to the end of their lives will have greater choice on receiving professional care and support within their own homes. The Hospice at Home Service aims to improve the care on offer to patents with palliative care needs such as cancer, motor neurone disease or other long term conditions. It has been commissioned by West Norfolk Clinical Commissioning Group as part of its Palliative Care Strategy and will be provided by Norfolk Community Health and Care NHS Trust (NCH&C) in partnership with Norfolk Hospice – Tapping House and Marie Curie Cancer Care. It is expected that the service will be in place from September.




The route to success in end of life care – achieving quality for lesbian, gay, bisexual and transgender people

June 28, 2012

Source: National End of Life Care Programme

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Date of publication: June 2012

Publication type: Report

In a nutshell: Lesbian, gay, bisexual or transgender (LGBT) people are at risk of not receiving high quality end of life care services, with many facing problems in terms of being treated with dignity and respect. The National End of Life Care Programme (NEoLCP) has published a new guide today to address this. This document offers guidance and advice for those working with LGBT people, and for LGBT people themselves, whether giving or receiving end of life care.

Length of publication: 36 pages

Acknowledgement: National Council for Palliative Care