End of life care: strengthening choice

November 28, 2018

Source: Together for Short Lives

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Date of publication: October 2018

Publication type: Report

In a nutshell: This inquiry report from The All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care, examines the extent to which the government is meeting its end of life care choice commitment for the 40,000 babies, children and young people in England with life-limiting and life-limiting conditions.

Length of publication: 55 pages


Caring for patients nearing the end of life: A good practice guide

November 28, 2018

Source: Royal College of Surgeons

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Date of publication:

Publication type: Guidance

In a nutshell: This guidance provides advice and support for surgeons and surgical teams who need to communicate with patients who are approaching the end of their life. The guide covers:

  • The steps surgeons can take to ensure that patients nearing the end of life experience a dignified death
  • A framework for communication and decision making
  • The important care planning documents in use at the end of life
  • How to work together as a team to ensure high-quality end of life care

Length of publication: 36 pages

Inequalities in access to hospice and palliative care

August 3, 2018

Source: Cross Party Group on Hospices and Palliative Care

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Date of publication: July 2018

Publication type: Report

In a nutshell: This report finds that people with terminal illnesses and life-limiting conditions in Wales – especially dementia, heart failure and neurological conditions – face a range of barriers in accessing hospice and palliative care. It argues that unequal access to appropriate care for people with terminal and life-limiting conditions is influenced by a range of complex factors. These include people’s diagnoses, age and where they live.

Length of publication: 44 pages


Who cares for the carers at hospital discharge at the end of life? A qualitative study of current practice in discharge planning and the potential value of using The Carer Support Needs Assessment Tool (CSNAT) Approach

April 5, 2018

Source: Palliative Medicine  2018 Feb 28. [Epub ahead of print]

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Date of publication: February 2018

Publication type: Journal Article

In a nutshell: This study identifies a novel intervention, which expands the focus of discharge planning to include assessment of carers’ support needs at transition, potentially preventing breakdown of care at home and patient readmissions to hospital.

Length of publication: 11 pages

Some important notes: Please contact your local NHS Library for the full text of the article.  Follow this link to find your local NHS Library

Emergency admissions at end of life set to sky rocket

April 5, 2018

Source: Marie Curie

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Date of publication: March 2018

Publication type: News Item

In a nutshell: Marie Curie says that the NHS is struggling to cope with A&E admissions of people who are in the last year of their lives. The charity says the situation will hit crisis point if care provided in the community is not significantly improved.  They warn that the significant rise in the number of deaths over the next 20 years means the cost of emergency admissions for people in the last year of life could almost double – costing the NHS an extra £2 billion, and up to 8,000 extra hospital beds could be needed by 2038 – the equivalent of an extra ward in every hospital with a major A&E unit.

Length of publication: 1 page


Quality standard: End of life care for infants, children and young people

November 3, 2017

Source: National Institute for Health and Care Excellence (NICE)

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Date of publication: September 2017

Publication type: Quality Standard

In a nutshell: This quality standard covers end of life care for infants, children and young people (from birth to 18 years) who have a life-limiting condition. Life-limiting conditions are those that are expected to result in an early death for the person. It also covers support for family members and carers. It describes high-quality care in priority areas for improvement.

Length of publication: 26 pages

South Bucks Hospice opens day centre with pioneering model of care

October 2, 2017

Source: ehospice

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Date of publication: September 2017

Publication type: News Item

In a nutshell: South Bucks Community Hospice in High Wycombe has opened a day hospice that is operating a new model of care. The new facility is non-bedded, allowing more patients to be cared for on a daily and weekly basis. The focus is patient-centric, offering unlimited psychotherapeutic care and they also have an area specifically designed to meet the needs of young people.

Length of publication: 1 page