Pilot scheme helps patients decide where they will die

May 29, 2018

Source: Channel 4 News

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Date of publication:  April 2018

Publication type: News Item

In a nutshell: Too many patients end their days in hospital, when they would far rather be at home with loved ones.

Now, for the first time, a secure on-line system links patients with GPs, hospitals and even paramedics, so that everyone can instantly see where patients want to go – and whether they want to be resuscitated.

The pilot project in London, called Co-ordinate My Care (CMC) plan, has seen marked changes in where people are dying, and the way in which they die.

Length of publication: 1 page

Some important notes: More information on Co-ordinate My Care can be found here


One Year On: The Government Response to the Review of Choice in End of Life Care

October 2, 2017

Source: Department of Health

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Date of publication: September 2017

Publication type: Report

In a nutshell: This report is an update on how the National End of Life Care Programme Board is delivering personalisation and choice in care for people at or near the end of life.

Length of publication: 24 pages

Some important notes: The original report can be found here

Cornwall Hospice Care launches new service to support more people in the community

October 2, 2017

Source: ehospice

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Date of publication: September 2017

Publication type: News Item

In a nutshell: Cornwall Hospice Care is launching a new series of support sessions in order to reach more patients with terminal conditions in the local community.  The Neighbourhood Hubs will offer free advice, support and information for patients, their carers and families.   They aim to help patients manage their symptoms which will hopefully increase their independence and confidence and help people to live as well as possible.

Length of publication: 1 page


Living with and dying from advanced heart failure: understanding the needs of older patients at the end of life

November 4, 2015

Source: BMC Geriatrics October 2015

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Date of publication: October 2015

Publication type: Research article

In a nutshell: Old and very old patients with advanced heart failure often do not acknowledge the seriousness and severity of the disease. Their communication with physicians predominantly focuses on curative treatment. Therefore, aspects such as self-management of the disease, dealing with emergency situations and end-of-life issues should be addressed more prominently. An advanced care planning (ACP) programme for heart disease in older people could be an option to improve patient-centred care.

Length of publication: 21 pages


Successful launch of North Manchester Macmillan Palliative Care Support Service

November 4, 2015

Source: Pennine Acute Hospitals NHS Trust

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Date of publication: October 2015

Publication type: Press release

In a nutshell: The North Manchester Macmillan Palliative Care Support Service (NMMPCSS) was launched September 21 2015. The £560k service is part of the Macmillan Cancer Improvement Partnership (MCIP) and has been developed through a partnership between Macmillan Cancer Support, the Manchester Clinical Commissioning Groups, The Pennine Acute Hospitals Trust, and St Ann’s Hospice. The service provides

  • Round-the-clock telephone advice, as well as visits and care in the home;
  • Dedicated professionals working together with patients and carers – seven days a week from 8am to 8pm
  • An open referral system for patients, carers and professionals. (Patients can refer themselves to the service)
  • Help with managing problems such as pain, sickness, breathlessness, and psychological and emotional support
  • Ways for people to talk about what is important to them in their care
  • Extra help at home when things are difficult, bringing support to carers


Is dying in hospital better than home in incurable cancer and what factors influence this? A population-based study

October 9, 2015

Source: BMC Medicine 2015, 13:235

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Date of publication: October 2015

Publication type: Article

In a nutshell: This study aims to determine the association between place of death, health services used, and pain, feeling at peace, and grief intensity.  The authors determined factors influencing death at home, and associations between place of death and pain, peace, and grief. Findings suggest that dying at home is better than hospital for peace and grief, but requires a discussion of preferences, GP home visits, and relatives to be given time off work.

Length of publication: 14 pages


Glasgow and Lothian Partnership Case Study: Getting people home with the support they need

October 7, 2015

Source: Marie Curie

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Date of publication: September 2015

Publication type: Case Study

In a nutshell: The Marie Curie Fast-track Service offers short day and evening visits at home to provide health and personal care to people living with a terminal illness in Glasgow and Lothian. The service is for people nearing the end of their lives who are at risk of admission as well as those in hospital needing more care before discharge.

Length of publication: 2 pages