Dementia: assessment, management and support for people living with dementia and their carers

July 4, 2018

Source: National Institute for Health and Care Excellence (NICE)

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Date of publication: June 2018

Publication type: Guideline

In a nutshell: This guideline covers diagnosing and managing dementia (including Alzheimer’s disease). It aims to improve care by making recommendations on training staff and helping carers to support people living with dementia.  Section 1.10 makes recommendations for Palliative care.

Length of publication: 43 pages

 

 

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Death in data: What happens at the end of life?

July 4, 2018

Source: BBC

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Date of publication: May 2018

Publication type:  News Item

In a nutshell: Scientists are expecting a spike in deaths in the coming years. As life expectancies increased, the number of people dying fell – but those deaths were merely delayed.

With people living longer, and often spending more time in ill-health, the Dying Matters Coalition wants to encourage people to talk about their wishes towards the end of their life, including where they want to die.

Length of publication: 1 Page

 

 


Providing comprehensive, person-centred assessment and support for family carers towards the end of life

May 29, 2018

 

Source: Hospice UK

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Date of publication: April 2018

Publication type: Report

In a nutshell: A  report by Hospice UK, Gail Ewing of the University of Cambridge, and Gunn Grande from the University of Manchester, discusses that comprehensive person-centred support for  family carers during end of life care requires whole-systems change within healthcare organisations. This document outlines the structures and processes that need to be in place to deliver such change in the form of 10 recommendations.

Length of publication: 24 pages

 


New licence deal means better access to published information for hospices

May 29, 2018

Source: ehospice

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Date of publication: News Item

Publication type: May 2018

In a nutshell: Celia Di Cicco, Librarian and Learning Resources Coordinator at Princess Alice Hospice in Surrey, writes about what the new NHS copyright licence deal will mean for hospices.

The Copyright Licensing Agency (CLA) and NHS England have signed a new five year licence agreement which improves access to published content for all NHS England staff and, for the first time, the deal includes hospices delivering NHS-commissioned care. The new deal will enable health workers to reproduce and share essential research and other content from digital and print versions of books, journals and magazines to support the delivery of patient care.

Length of publication: 1 page

Some important notes: The licence can be found here


A road less lonely: Moving forward with public health approaches to death, dying and bereavement in Scotland

May 29, 2018

Source: ehospice

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Date of publication: April 2018

Publication type: Report

In a nutshell: The Scottish Partnership for Palliative Care and Good Life, Good Death, Good Grief have published a report looking at how to encourage more supportive attitudes and behaviours relating to death, dying and bereavement in Scotland. It highlights a range of relevant projects that are improving people’s experiences of death, dying and bereavement.

Length of publication: 92 pages

 


The Alzheimer’s Disease Home Hospice Knowledge Scale: development, validity and reliability

May 29, 2018

Source: International Journal of Palliative Nursing 2018 24:3, 108-114

Follow this link for  abstract

Date of publication:  March 2018

Publication type: Journal Article

In a nutshell:  The Alzheimer’s Disease Home Hospice Knowledge Scale proved to be a valid and reliable tool to assess knowledge about hospice care in the area of Alzheimer’s disease. It might provide an effective tool for palliative care nurses to communicate with family caregivers of persons with Alzheimer’s disease at the end of life.

Length of publication: 7 pages

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.


Pilot scheme helps patients decide where they will die

May 29, 2018

Source: Channel 4 News

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Date of publication:  April 2018

Publication type: News Item

In a nutshell: Too many patients end their days in hospital, when they would far rather be at home with loved ones.

Now, for the first time, a secure on-line system links patients with GPs, hospitals and even paramedics, so that everyone can instantly see where patients want to go – and whether they want to be resuscitated.

The pilot project in London, called Co-ordinate My Care (CMC) plan, has seen marked changes in where people are dying, and the way in which they die.

Length of publication: 1 page

Some important notes: More information on Co-ordinate My Care can be found here