Talking about dying: How to begin honest conversations about what lies ahead

November 28, 2018

Source: Royal College of Physicians

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Date of publication: October 2018

Publication type: Report

In a nutshell: This report seeks to offer advice and support for doctors who meet challenges when caring for patients with a diagnosis of a serious, potentially life-limiting illness. It highlights some of the barriers, and busts common myths that might hamper a successful conversation between doctor and patient. The document also contains a series of resources to aid doctors in developing confidence when discussing their patients’ preferences and values as they approach the end of life.

Length of publication: 19 pages

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End of life care: strengthening choice

November 28, 2018

Source: Together for Short Lives

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Date of publication: October 2018

Publication type: Report

In a nutshell: This inquiry report from The All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care, examines the extent to which the government is meeting its end of life care choice commitment for the 40,000 babies, children and young people in England with life-limiting and life-limiting conditions.

Length of publication: 55 pages


Multi-professional-delivered enhanced supportive care improves quality of life for patients with incurable cancer

November 28, 2018

Source: International Journal of Palliative Nursing 2018; 24 (10): 510-514

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Date of publication: October 2018

Publication type: Report

In a nutshell: This short report evaluates the impact of an Enhanced Supportive Care (ESC) model at a single cancer centre (the Clatterbridge Cancer Centre) and evaluates the impact on patients’ quality of life, with a secondary focus on other outcomes including survival and admissions.

Length of publication: 5 pages


Music therapy in UK palliative and end-of-life care: a service evaluation

September 12, 2018

Source: BMJ Supportive & Palliative Care 2018; 8 (3): 282-284

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Date of publication: September 2018

Publication type: Short Report

In a nutshell: This service evaluation aims to identify the provision, role and perceived impact of UK music therapists in supporting patients receiving palliative and end-of-life care, their families and health and social care professionals.

Length of publication: 3 pages


Making peace with death: National attitudes to death, dying and bereavement

September 12, 2018

Source: Co-op Funeralcare

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Date of publication: August 2018

Publication type: Report

In a nutshell: This new report provides the results of a survey commissioned by the Co-op to understand national attitudes towards death, dying and bereavement and the ways in which people plan for death. The research reveals that almost 18 million people are uncomfortable talking about death, 4 million people have experienced financial hardship as a result of someone’s death and the average Brit first suffers a bereavement of someone close to them aged 20.

Length of publication: 14 pages


Inequalities in access to hospice and palliative care

August 3, 2018

Source: Cross Party Group on Hospices and Palliative Care

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Date of publication: July 2018

Publication type: Report

In a nutshell: This report finds that people with terminal illnesses and life-limiting conditions in Wales – especially dementia, heart failure and neurological conditions – face a range of barriers in accessing hospice and palliative care. It argues that unequal access to appropriate care for people with terminal and life-limiting conditions is influenced by a range of complex factors. These include people’s diagnoses, age and where they live.

Length of publication: 44 pages

 


Providing comprehensive, person-centred assessment and support for family carers towards the end of life

May 29, 2018

 

Source: Hospice UK

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Date of publication: April 2018

Publication type: Report

In a nutshell: A  report by Hospice UK, Gail Ewing of the University of Cambridge, and Gunn Grande from the University of Manchester, discusses that comprehensive person-centred support for  family carers during end of life care requires whole-systems change within healthcare organisations. This document outlines the structures and processes that need to be in place to deliver such change in the form of 10 recommendations.

Length of publication: 24 pages