Establishing a structured plan to provide high-quality end-of-life care in community settings

March 6, 2019

Source: British Journal of Community Nursing 2019; 24 (3)

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Date of publication: February 2019

Publication type: Article

In a nutshell: This article looks at the experiences of registered community nurses providing end of life care and how having an end of life care pathway plan can help them in providing better evidence-based compassionate care.

Length of publication: 7 pages


Fitting the pieces together with the AMBER care bundle

December 21, 2012

Source: National End of Life Care Programme

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Date of publication: December 2012

Publication type: Website

In a nutshell: The Amber Care Bundle is a simple tool which combines identification questions, four clinical interventions and systematic monitoring that can be applied in adult ward settings. It has been used in seventeen hospitals in the English NHS with a wider network which is committed to implement AMBER care bundle in their hospitals. This article looks at the rollout of Amber Care Bundle at Worcester Acute Hospitals.

Length of publication: 1 page

Hospitals ‘failing to deliver’ appropriate end-of-life care to dementia patients

May 22, 2012


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Date of publication: April 2012

Publication type: Website

In a nutshell: Researchers at Manchester Royal Infirmary tracked the experiences of 32 patients with dementia who were admitted from nursing or care homes and died in the hospital over a 12 month period. They investigated whether the national Gold Standards Framework (GSF) for end of life care was useful in predicting death and whether tools such as advanced care planning or treatment pathways were used. The authors concluded that while two thirds of the patients demonstrated characteristics of end stage dementia, the GSF was not accurate in predicting death.

Length of publication: 1 page

Tried and tested End of Life Care Modelling Tools launched

May 22, 2012

Source: National End of Life Care Intelligence Network

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Date of publication: May 2012

Publication type: Website

In a nutshell: Eight early adopter sites across England have worked with the National End of Life Care Programme to trial a set of modelling tools to support end of life care commissioners and planners.

The updated tools are now freely available on the National End of Life Care Intelligence Network website together with a range of supporting materials, including workbooks and case studies from the early adopters.

There are three modelling tools:

  • The Cohort Model that identifies the end of life care needs of their population over a 10-year period
  • The Skills for Health Functional Analysis tool, which assesses workforce skills required to ensure quality end of life care provision
  • The Yorkshire & the Humber Co-Design Model, which assesses how many people dying in hospital could reasonably end life in an alternative care setting and provides costings for Alternative Care Pathways.

Acknowledgement: NHS National End of Life Care Programme

Palliative and end of life rapid discharge pathway

March 20, 2012

Source: National End of Life Care Programme

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Date of publication: March 2012

Publication type: Case study

In a nutshell: In 2009 the University Hospital of North Staffordshire introduced a palliative and end of life rapid discharge pathway for patients in or approaching the terminal phase of their illness.  Discharge is arranged at the earliest opportunity, usually within days or hours.  It is already having a significant impact with around 45 patients a quarter discharged in this way. Unanticipated benefits include the development of strong working relationships between secondary and primary care,  new services being developed and the development of the role of clinical champions for every clinical area who help spread good practice (there are 50 at present).

Length of publication: 1 webpage

Acknowledgement: National End of Life Care Programme

Anticipatory care planning and integration: A primary care pilot study aimed at reducing unplanned hospitalization

March 20, 2012

Source: British Journal of General Practice, 2012, 62, (595) (e113-e120)

Date of publication: February 2012

Publication type: Article

In a nutshell: This article reviews a pilot study in Scotland which aimed to provide anticipatory care plans (ACPs) for patients who were at risk of hospital admission. Patients’ wishes in the event of sudden deterioration in their health were recorded.  The pilot achieved statistically significant reductions in unplanned hospitalisation for patients with multiple morbidities and  demonstrates the potential for providing both better care as well as better value for health and social care services.

Length of publication: 8 pages

Some important notes:  Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.

Acknowledgement: Embase

End-of-life care pathways as tools to promote and support a good death: a critical commentary

February 23, 2012

Source:  European Journal of Cancer Care

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Date of publication: January 2012

Publication type: article

In a nutshell:  This paper challenges whether end-of-life care (EoLC) pathways facilitate the accomplishment of a ‘good death’. EoLC pathways are widely recommended as ‘best practice’. However there are concerns about the efficacy of care pathways with regard to their impact on patient care.  Further examination of two EoLC pathways reveals how biomedical aspects of care are privileged. Despite this evidence indicates EoLC pathways may facilitate a particular type of ‘good death’, especially one associated with the dying process and framed within biomedicine.

Length of publication: 11 pages

Acknowledgement: BNI