Dementia: assessment, management and support for people living with dementia and their carers

July 4, 2018

Source: National Institute for Health and Care Excellence (NICE)

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Date of publication: June 2018

Publication type: Guideline

In a nutshell: This guideline covers diagnosing and managing dementia (including Alzheimer’s disease). It aims to improve care by making recommendations on training staff and helping carers to support people living with dementia.  Section 1.10 makes recommendations for Palliative care.

Length of publication: 43 pages




Providing comprehensive, person-centred assessment and support for family carers towards the end of life

May 29, 2018


Source: Hospice UK

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Date of publication: April 2018

Publication type: Report

In a nutshell: A  report by Hospice UK, Gail Ewing of the University of Cambridge, and Gunn Grande from the University of Manchester, discusses that comprehensive person-centred support for  family carers during end of life care requires whole-systems change within healthcare organisations. This document outlines the structures and processes that need to be in place to deliver such change in the form of 10 recommendations.

Length of publication: 24 pages


Who cares for the carers at hospital discharge at the end of life? A qualitative study of current practice in discharge planning and the potential value of using The Carer Support Needs Assessment Tool (CSNAT) Approach

April 5, 2018

Source: Palliative Medicine  2018 Feb 28. [Epub ahead of print]

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Date of publication: February 2018

Publication type: Journal Article

In a nutshell: This study identifies a novel intervention, which expands the focus of discharge planning to include assessment of carers’ support needs at transition, potentially preventing breakdown of care at home and patient readmissions to hospital.

Length of publication: 11 pages

Some important notes: Please contact your local NHS Library for the full text of the article.  Follow this link to find your local NHS Library

Non-cancer palliative care in the community needs greater interprofessional collaboration to maintain coordinated care and manage uncertainty

July 9, 2015

Source: Evidence-based Nursing 2015 v.18(3) p79

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Date of publication: July 2015

Publication type: Article

In a nutshell: Patients with non-cancer conditions often experience community palliative care as inadequate and in need of planning and innovation. The perspectives of three main groups (patient, formal and informal carers) might help understand expectations and conflicts. This review aimed to identify, appraise and synthesise the evidence on views about the provision of palliative care for patients with non-malignant conditions by Palliative Care providers and to reveal any research gaps.

Length of publication: 1 page

Some important notes: This article is available in full text to all NHS Staff using Athens. For more information about accessing full text follow this link to find your local NHS Library


Development of the Carers’ Alert Thermometer (CAT) to identify family carers struggling with caring for someone dying at home: a mixed method consensus study

May 6, 2015

Source: BMC Palliative Care 2015 14; 22

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Date of publication: May 2015

Publication type: Research article

In a nutshell: The aim of the study was to explore what professionals and carers of patients with cancer and advanced progressive illness, in their last year of life, find burdensome and to develop an alert system for use by non-specialist staff. A mixed-method, multi-phased, consensus study sequentially utilising qualitative and quantitative data to develop and pilot the Carers’ Alert Thermometer (CAT). 245 people participated in the study across a range of health and social care settings in the North West of England (2011–2014). The results identified a number of key domains for inclusion in the CAT. The 8 domains fit within two overarching themes of the reported carer experience; the support needed by the carer to provide care and the support needed for the carer’s own health and well-being. The resultant CAT is an evidence-based alert thermometer consisting of 10 questions, guidance on the possible actions for each alert and space for an action plan to be jointly agreed by the assessor and carer. Preliminary piloting of the CAT has shown it to be valued, fit for purpose and it can be administered by a range of personnel. In conclusion, the CAT enables the identification of current and potential future needs so a proactive approach can be taken to supporting the carer as their role develops over time, with a view to enhancing their well-being and preventing avoidable hospital admissions; ultimately supporting patient choice to remain in their own home.

Length of publication: 21 pages


Living and dying with dementia in Scotland: Barriers to care

February 3, 2015

Source: Marie Curie Cancer Care

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Date of publication: February 2015

Publication type: Report

In a nutshell: This report addresses the challenge of improving care and support available to people with dementia at the end of life as well as their families. By focusing on the barriers, improvements can be made in care and can ensure that all those who might benefit from it receive it.

Length of publication: 24p.


Caring for people in the last days and hours of life – Guidance

January 9, 2015

Source: The Scottish Government

Follow this link for the full-text report

Date of publication: December 2014

Publication type: Guidance

In a nutshell: The Scottish Government has published new national guidance to support clinical and care staff who are planning and providing care during the last days and hours of life, following the phasing out of the Liverpool Care Pathway.

Length of publication: 15 pages