End of life care for infants, children and young people with life-limiting conditions: planning and management

January 10, 2017

Source: National Institute for Health and Care Excellence (NICE)

Follow this link for fulltext

Date of publication: December 2016

Publication type: Guideline

In a nutshell: This guideline covers the planning and management of end of life and palliative care for infants, children and young people (aged 0–17 years) with life-limiting conditions. It aims to involve children, young people and their families in decisions about their care, and improve the support that is available to them throughout their lives.

Length of publication: 44 pages

Advertisements

Local Learning and Evaluation Report

August 23, 2011

Source: ACT

Follow this link for fulltext

Date of publication: August 2011

Publication type: Report

In a nutshell: This report summarises the key learning from the ACT and Children’s Hospices UK Local Square Table Programme which consisted of 37 local ‘Square Tables’ which took place in Spring 2011 across England. The main objective was to increase understanding of children’s palliative care.

Participants included life-limited and life-threatened young people, their families, health, education and social care professionals, providers from the voluntary and statutory sectors, commissioners and other participants including faith and business leaders. 

The report captures the discussions that took place and the emergent themes: Accessibility of services; Working in partnership; Workforce & local community engagement; Emerging issues; and Funding.

Length of publication: 16 pages

Acknowledgement: The King’s Fund Health Management and Policy Alert


Training aimed at complex needs

June 24, 2011

Source: Nursing Standard 2011, vol.25(35), p62-3

Follow this link for the full text article

Date: May 2011

Publication type: Article

Publication length: 2 pages

In a nutshell: This article describes the work of the charity Demelza in providing family-orientated hospice care for children with life-limiting illnesses and their families in Kent, East Sussex and south east London. The work of nurses in the community palliative teams who provide care for children at home is also highlighted.

Some important notes: An NHS Athens password is required to access this article online. Follow this link to register for an Athens password.


Transition to adult services for children and young people with palliative care needs: a systematic review

March 25, 2011

Source: Archives Disease in Childhood, 2011, 96(1) p.78-84

Follow this link for fulltext

Date of publication: January 2011

Publication type: Article

In a nutshell: This systematic review looks at the transition process from child to adult services for young people requiring palliative care. The impact of care provided is considered and this is accompanied by a discussion on what factors facilitate or act as a barrier to successful transition. The reviewers looked at 92 studies and their conclusions include:

  • There’s no evidence of transition services that address “palliative care” as an overall concept.
  • Transition programs that exist are mainly condition-specific.
  • No long-term outcome data exist to compare the effectiveness/cost effectiveness of the condition-specific or generic transition models.
  • Effective transition programs should be multidisciplinary, bespoke for the patient and navigated with the aid of a designated key worker.

Length of publication: 7 pages

Some important notes: This article is available in full text to all NHS Staff using Athens, for more information about accessing full text follow this link to find your local NHS Library.

Acknowledgement: BNI


Happier Endings

November 17, 2010

Source: Nursing Standard, 2010, 25(5) p24-5

Follow this link for the fulltext article

Date of Publication: October 2010

Publication Type: Article

In a nutshell: The nurse-led Ty Hafan children’s hospice in Wales has pioneered an approach to end of life care adopted by other NHS bodies in Wales. Development of a pack of guidelines to help each family and child tailor their care, provision of a hydrotherapy pool, a multi-sensory room, pet therapy and specific activities for teenagers are described.

Length of Publication: 2 pages

Some important notes: This article is available in full text to all NHS Staff using Athens, for more information about accessing full text follow this link to find your local NHS Library


Paediatric palliative home care by general paediatricians: a multimethod study

June 25, 2010

Source:  Biomed Central  2010, 9 (11)

Follow this link for fulltext.

Date of publication: June, 2010

Publication type: article

In a nutshell:  This article focused on palliative care for children and adolescents and examines current practice in Germany where  it is common for specialist paediatricians to be based in a primary care setting.  The study examines barriers and incentives as well as the professional self-image of paediatricians involved in palliative care provision.  Key recommendations are made in relation to education, communication skills, local networks and on-call support are made. 

Length of publication: 30 pages

Acknowledgement:  Omega 


ACT calls for more Community Children’s Nursing to boost care for terminally ill children

March 23, 2010

Title: ACT calls for more Community Children’s Nursing to boost care for terminally ill children

Source: ACT

Follow this link for web article

Date of Publication: March 2010

Publication Type: Web Article

In a nutshell: ACT has welcomed the launch of Front Line Care, the report by the Prime Minister’s Commission on the Future of Nursing and Midwifery in England. One of the report’s key recommendations is a commitment to improve the care of all people with long-term health conditions, including children and young people, and the recognition of the leading role nurses play in delivering this.

Acknowledgements: The Prime Minister’s Commission on The Future of Midwifery and Nursing in England