No regrets: how talking more openly about death could help people die well

May 17, 2017

Source: Macmillan Cancer Support

Follow this link for fulltext

Date of publication: April 2017

Publication type: Report

In a nutshell: This report by Macmillan Cancer Support finds that more than 62,000 people die of cancer in hospitals each year in the UK despite a significant majority stating that they would like to die at home. It reveals the challenging obstacles that people face when discussing death and highlights the need for better communication to help people plan for their final days.

Length of publication: 15 pages

 


Scottish Partnership for Palliative Care: Strategic Framework for Action

February 3, 2015

Source: Scottish Partnership for Palliative Care

Follow this link for the position paper

Date of publication: January 2015

Publication type: Position Paper

In a nutshell: The Scottish Government has produced a position paper which aims to set out the current position regarding the development of a Strategic Framework for Action for Palliative and End of Life Care.

Length of publication: 12 pages

 


Caring for people in the last days and hours of life – Guidance

January 9, 2015

Source: The Scottish Government

Follow this link for the full-text report

Date of publication: December 2014

Publication type: Guidance

In a nutshell: The Scottish Government has published new national guidance to support clinical and care staff who are planning and providing care during the last days and hours of life, following the phasing out of the Liverpool Care Pathway.

Length of publication: 15 pages

 


End of Life and palliative care: “Thinking about the words we use”

December 11, 2014

Source: SCIE and NCPC

Follow this link for the website

Date of publication: December 2014

Publication type: Video

In a nutshell: A new video by the Social Care Institute for Excellence (SCIE) and NCPC, launched at the 9th Annual Conference on Dementia and End of Life,  looks at the words that care and health staff often use when someone has been given a terminal diagnosis or is dying.  The film looks at how people are first confronted with this terminology. It might be when a professional speaks to them; or it might be on signs in hospitals and other care settings. This, at a time when people – and their relatives – might be confused, angry and in the dark about what to expect

 


One chance to get it right: Improving people’s experience of care in the last few days and hours of life

July 10, 2014

Source: Leadership Alliance for the Care of Dying People

Follow this link for the report

Date of publication: June 2014

Publication type: Report

In a nutshell: The Leadership Alliance for the Care of Dying People (LACDP) has published a new approach to caring for people in the last few days and hours of life, that focuses on the needs and wishes of the dying person and those closest to them, in both the planning and delivery of care wherever that may be.

Length of publication: 168p.

 


Dying well at home: the case for integrated working

May 22, 2013

Source: SCIE

Follow this link for for the full report

Date of publication: May 2013

Publication type: Report

In a nutshell: This guide is based on evidence about what is needed to offer good care to people who are approaching the end of life and wish to be cared for and die in their own homes. It argues that whilst a good death at home may not be a feasible or desirable death for everyone, it could be a reality for many more people if there were services to support it.

Length of publication: 54 pages


New end of life care profiles for each local authority

August 24, 2012

Source: National End of Life Care Intelligence Network

Follow this link for the website

Date of publication:August 2012

Publication type: Website

In a nutshell: The End of Life Care Local Authority Profiles 2012 present over 50 indicators for each local authority in England. They include social care indicators for the first time.

There are indicators that can be used to predict need:

  • population
  • deaths

and to look at current patterns of care:

  • place of death
  • cause of death
  • deaths in hospital
  • care homes
  • social care.

Acknowledgement: National End of Life Care Programme