Palliative care for people with dementia in the terminal phase: a mixed-methods qualitative study to inform service development

May 17, 2017

Source: BMC Palliative Care 2017 Apr; 16 (1): 28

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Date of publication: April 2017

Publication type: Journal Article

In a nutshell: This study aims to understand what needs to be in place to develop optimal palliative care services for people with dementia in the terminal phase.

Length of publication: 14 pages

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Commissioning care for people with dementia at the end of life: a mixed-methods study

January 10, 2017

Source: BMJ Open 2016; 6: e013554

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Date of publication: December 2016

Publication type: Journal Article

In a nutshell: This article aims to understand how end-of-life care for people with dementia is currently commissioned and organised, with a view to informing the development of commissioning guidance for good-quality community-based EoL care in dementia.

Length of publication: 8 pages


UK end-of-life care services in dementia, initiatives and sustainability: results of a national online survey

November 28, 2016

Source: BMJ Supportive & Palliative Care 2016

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Date of publication: October 2016

Publication type: Short report

In a nutshell: This short report features an update of a national survey run in the UK by the National Council for Palliative Care (NCPC) in 2008 on services for end-of-life care for people with dementia. This report updates the NCPC survey to review progress in previously identified services, identify factors that lead to sustainable services and identify new initiatives in this area of care.


Dying with dementia

October 18, 2016

Source: Public Health England

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Date of publication: August 2016

Publication type: Briefing

In a nutshell: This intelligence briefing produced by the Dementia Intelligence Network (DIN) in collaboration with the National End of Life Care Intelligence Network (NEoLCIN) draws on national data to illustrate key information related to people who died with dementia in 2012-14. The briefing focuses on the setting and circumstances of death with the purpose of informing key policies and to deliver high-quality palliative care to people with end-of-life dementia.

Length of publication: 12 pages


Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals

November 4, 2015

Source: BMC Palliative Care 2015, v.14:56

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Date of publication: November 2015

Publication type: Research article

In a nutshell: The objective of this study was to explore when professionals in long-term care settings consider a person with dementia in need of palliative care. The findings from this study suggest that professionals across Europe have different opinions regarding the time point when to consider a person with dementia in need of palliative care.

Length of publication:6 pages

 


UK quality statements on end of life care in dementia: a systematic review of research evidence

November 3, 2015

Source: BMC Palliative Care 2015 v14.:51

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Date of publication: October 2015

Publication type: Research article

In a nutshell: The importance of a palliative approach in the care of people with dementia is recognised and there are national polices to enhance current care. In the UK implementation of these polices is promoted by the National Institute for Health and Care Excellence (NICE) Dementia Quality Standards (QS). Since publication of the QS new care interventions have been developed. This article critically reviews current research evidence relevant to EOL Quality Standards. The article concludes that Quality statements relevant to EOL care are useful to advance practice however they have a limited evidence base. High quality empirical work is needed to establish that the recommendations in these statements are best practice.

Length of publication: 15 pages

 

 


Dementia support workers to improve end of life care in care homes

July 16, 2015

Source: ehospice.com

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Date of publication: July 2015

Publication type: Webpage

In a nutshell: Two dedicated dementia support workers have been appointed in Walsall to improve dementia care and end of life care for people diagnosed with dementia living in care homes across the town. The dementia support workers will support staff at care homes across Walsall to use evidence based tools – such as the Abbey pain scale – to help the homes become more dementia friendly and ensure that end of life care plans are carefully considered and tailored for each individual.