No regrets: how talking more openly about death could help people die well

May 17, 2017

Source: Macmillan Cancer Support

Follow this link for fulltext

Date of publication: April 2017

Publication type: Report

In a nutshell: This report by Macmillan Cancer Support finds that more than 62,000 people die of cancer in hospitals each year in the UK despite a significant majority stating that they would like to die at home. It reveals the challenging obstacles that people face when discussing death and highlights the need for better communication to help people plan for their final days.

Length of publication: 15 pages



The road ahead – National Council for Palliative Care Strategy 2015-2018

May 6, 2015

Source: NCPC

Follow this link for the strategy

Date of publication: May 2015

Publication type: Strategy document

In a nutshell: NCPC has published its official strategy for 2015-18

The new strategy has been agreed by NCPC’s Board of Trustees and affirms their vision for palliative and end of life care, demonstrates how they can play an important role in shaping  the future, and sets out the areas in which they will work to achieve these goals.

The Strategy highlights four priority areas of work:

  • Changing attitudes
  • Changing behaviour
  • Improving Care and Support
  • Improving Evidence and Intelligence

Length of publication: 7 pages


What to expect when someone important to you is dying: A guide for carers, families and friends of dying people

March 30, 2015

Source: NCPC; Sue Ryder; Hospice UK

Follow this link for the report

Date of publication: March 2015

Publication type: Guidelines

In a nutshell:A new guide which prepares people on what to expect when someone is dying has been published by the National Council for Palliative Care. ‘What to expect when someone important to you is dying’ aims to demystify the dying process so that people better understand the changes that can happen to their loved ones in the last days of life.

Length of publication: 24p.


Scottish Partnership for Palliative Care: Strategic Framework for Action

February 3, 2015

Source: Scottish Partnership for Palliative Care

Follow this link for the position paper

Date of publication: January 2015

Publication type: Position Paper

In a nutshell: The Scottish Government has produced a position paper which aims to set out the current position regarding the development of a Strategic Framework for Action for Palliative and End of Life Care.

Length of publication: 12 pages


Caring for people in the last days and hours of life – Guidance

January 9, 2015

Source: The Scottish Government

Follow this link for the full-text report

Date of publication: December 2014

Publication type: Guidance

In a nutshell: The Scottish Government has published new national guidance to support clinical and care staff who are planning and providing care during the last days and hours of life, following the phasing out of the Liverpool Care Pathway.

Length of publication: 15 pages


End of Life and palliative care: “Thinking about the words we use”

December 11, 2014

Source: SCIE and NCPC

Follow this link for the website

Date of publication: December 2014

Publication type: Video

In a nutshell: A new video by the Social Care Institute for Excellence (SCIE) and NCPC, launched at the 9th Annual Conference on Dementia and End of Life,  looks at the words that care and health staff often use when someone has been given a terminal diagnosis or is dying.  The film looks at how people are first confronted with this terminology. It might be when a professional speaks to them; or it might be on signs in hospitals and other care settings. This, at a time when people – and their relatives – might be confused, angry and in the dark about what to expect


Dying at home: A qualitative study of the perspectives of older South Asians living in the United Kingdom

February 10, 2014

Source: Palliative Medicine 2014 v.28(3), p.264-272

Follow this link for the abstract

Date of publication: March 2014

Publication type: Article

In a nutshell: This article aims to explore beliefs, attitudes and expectations expressed by older South Asians living in East London about dying at home. Findings suggest that older people of South Asian ethnicity living in East London perceive home as more than a physical location for dying relatives. They make efforts to adhere, and also adapt, to important social and cultural values relating to death and dying as part of the wider challenge of living in an emigrant society.

Length of publication: 8 pages

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.