End of Life Care Horizon Scanning Bulletin Volume 9 Issue 4 – 5

May 29, 2018

Providing comprehensive, person-centred assessment and support for family carers towards the end of life

May 29, 2018


Source: Hospice UK

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Date of publication: April 2018

Publication type: Report

In a nutshell: A  report by Hospice UK, Gail Ewing of the University of Cambridge, and Gunn Grande from the University of Manchester, discusses that comprehensive person-centred support for  family carers during end of life care requires whole-systems change within healthcare organisations. This document outlines the structures and processes that need to be in place to deliver such change in the form of 10 recommendations.

Length of publication: 24 pages


A checklist to a good transition

May 29, 2018

Source: Together For Short Lives

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Date of publication: March 2018

Publication type: Resource

In a nutshell:  ‘A checklist to a good transition’ is designed for seriously ill young people to assess how well agencies involved in their education and care are working together to enable a smooth transition. In particular, the checklist focuses on enabling young people to play an active role in planning and decision-making, whilst acknowledging the ongoing role parents and carers will likely play in their care.

The checklist itself is targeted at young people aged 14-18+ and addresses three pivotal points in transition:

Preparing for adulthood: aimed at young people who have started talking about their plans for the future with teachers and care providers
Preparing for moving on: aimed at young people who have a transition plan in place and are moving towards transferring to adult services
Settling into adult services: aimed at young people who have made the transition to adult services and are continuing to receive help and information to thrive in adulthood.

While the resource is intended to be used by young people and their families, it can also be a useful tool to guide person-centred discussions between professionals, young people and their family members. Professionals may find that the questions asked in the checklist are good prompts for conversations around transition and advance care planning.

Length of publication: 11 pages


The Alzheimer’s Disease Home Hospice Knowledge Scale: development, validity and reliability

May 29, 2018

Source: International Journal of Palliative Nursing 2018 24:3, 108-114

Follow this link for  abstract

Date of publication:  March 2018

Publication type: Journal Article

In a nutshell:  The Alzheimer’s Disease Home Hospice Knowledge Scale proved to be a valid and reliable tool to assess knowledge about hospice care in the area of Alzheimer’s disease. It might provide an effective tool for palliative care nurses to communicate with family caregivers of persons with Alzheimer’s disease at the end of life.

Length of publication: 7 pages

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.

Pilot scheme helps patients decide where they will die

May 29, 2018

Source: Channel 4 News

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Date of publication:  April 2018

Publication type: News Item

In a nutshell: Too many patients end their days in hospital, when they would far rather be at home with loved ones.

Now, for the first time, a secure on-line system links patients with GPs, hospitals and even paramedics, so that everyone can instantly see where patients want to go – and whether they want to be resuscitated.

The pilot project in London, called Co-ordinate My Care (CMC) plan, has seen marked changes in where people are dying, and the way in which they die.

Length of publication: 1 page

Some important notes: More information on Co-ordinate My Care can be found here

Who cares for the carers at hospital discharge at the end of life? A qualitative study of current practice in discharge planning and the potential value of using The Carer Support Needs Assessment Tool (CSNAT) Approach

April 5, 2018

Source: Palliative Medicine  2018 Feb 28. [Epub ahead of print]

Follow this link for abstract

Date of publication: February 2018

Publication type: Journal Article

In a nutshell: This study identifies a novel intervention, which expands the focus of discharge planning to include assessment of carers’ support needs at transition, potentially preventing breakdown of care at home and patient readmissions to hospital.

Length of publication: 11 pages

Some important notes: Please contact your local NHS Library for the full text of the article.  Follow this link to find your local NHS Library

Palliative care for people with schizophrenia: a qualitative study of an under-serviced group in need

April 5, 2018

Source: BMC Palliative Care  2018; 17:53

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Date of publication: March 2018

Publication type: Journal Article

In a nutshell: People with schizophrenia are at risk of receiving poorer end of life care than other patients. They are often undertreated, avoid treatment and are about half as likely to access palliative care. There are limited options for end of life care for this under-serviced group in need. To ensure people with schizophrenia are well supported at the end of life a model of palliative care is required that offers both specialised services and capacity building within the pre-existing health workforce. Resources are needed to address the stigma and lack of services faced by this vulnerable group.

Length of publication: 11 pages