Can comprehensive specialised end-of-life care be provided at home? Lessons from a study of an innovative consultant-led community service in the UK

September 9, 2014

Source: European Journal of Cancer Care 2014 doi: 10.1111/ecc.12195

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Date of publication: April 2014 (online ahead of print)

Publication type: Article

In a nutshell: The Midhurst Macmillan Specialist Palliative Care Service (MMSPCS) is a UK, medical consultant-led, multidisciplinary team aiming to provide round-the-clock advice and care, including specialist interventions, in the home, community hospitals and care homes. The authors present a study of the Midhurst Macmillan Specialist Palliative Care Service, which provides specialised hands-on palliative care in a community setting in an area of South-East England, UK. This service is distinct in that it is medical consultant-led and aims to deliver interventions in the home setting that are usually considered to require hospital admission. Patients and carers reported positive experiences of support, linked to the flexible way the service worked.

Length of publication: 14p.

 


Dying at home: A qualitative study of the perspectives of older South Asians living in the United Kingdom

February 10, 2014

Source: Palliative Medicine 2014 v.28(3), p.264-272

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Date of publication: March 2014

Publication type: Article

In a nutshell: This article aims to explore beliefs, attitudes and expectations expressed by older South Asians living in East London about dying at home. Findings suggest that older people of South Asian ethnicity living in East London perceive home as more than a physical location for dying relatives. They make efforts to adhere, and also adapt, to important social and cultural values relating to death and dying as part of the wider challenge of living in an emigrant society.

Length of publication: 8 pages

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.

 


Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers

August 9, 2013

Source:  The Cochrane Library

Follow this link to download the review

Date of publication: June 2013

Publication type: Systematic Review

In a nutshell: A new review from the Cochrane Pain, Palliative and Supportive Care Group looked at the impact of home palliative care services on the chances of dying at home and on other outcomes for patients and their caregivers, such as symptom control and quality of life. The review team also aimed to compare resource use and costs associated with these services and summarize the current evidence on cost-effectiveness.

Length of publication: 281 pages


Midhurst Macmillan Community Specialist Palliative Care Service: Delivering end-of-life care in the community

August 9, 2013

Source: The King’s Fund

Follow this link to download the full-text report

Date of publication: August 2013

Publication type: Report

In a nutshell: the aim of this report was to establish whether community specialist palliative care services offering home nursing increased rates of death at home (avoiding hospitalisation) compared to other models. The review concluded that the evidence that palliative care home nursing for patients with life-limiting illnesses increased the rate of death at home without compromising symptoms, quality of life or increasing costs was inconclusive. The authors’ conclusions are suitably cautious given the limited evidence available.

Length of publication: 34p.

 


A ‘good death’ at home: community nurses helping to make it possible

February 1, 2013

Source: British Journal of Community Nursing, v.18(1),  pp40 – 42

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Date of publication: January 2013

Publication type: Article

In a nutshell: This article discusses current end of life policies and how the community nurse is central to their implementation. It draws on some recent research which has identified the important steps that enable a community nurse to facilitate a good death and a particular research study which illustrated the unique role of the Community Nurse in providing end of life care in a rural setting, but also the challenges.

Length of publication: 3 pages

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.

Acknowledgement: Internurse


Bedfordshire’s Partnership for Excellence in Palliative Support (PEPS)

October 26, 2012

Source: National End of Life Care Programme

Follow this link for case study report

Date of publication: October 2012

Publication type: Website

In a nutshell: Bedfordshire’s Partnership for Excellence in Palliative Support (PEPS) pilot is helping to integrate all end of life care services in the area. It is based on a ‘memorandum of understanding’ between 15 local organisations and a central electronic register that all individuals sign up to. So far two thirds of people’s deaths have taken place in their usual homes. The proportion of home deaths in the area has risen and hospital deaths fallen.

Length of publication: 1p.

Acknowledgement: National End of Life Care Programme

 


Leeds Strategic Framework for Adult Palliative and End of Life Care 2010 – 2015

October 26, 2012

Source: Leeds Community Healthcare

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Date of publication: October 2012

Publication type: Trust report

In a nutshell: The new Leeds Strategic Framework for Adult Palliative and End of Life Care 2010-2015 provides a clear direction for developing and improving palliative care and end of life services, across the city, during the five years 2010 – 2015.  The aspiration for Leeds is to increase the percentage of patients who are cared for and die in their preferred place of care. This will mean reducing the number of deaths in a hospital setting, and increasing those at home.

Length of publication: 13p.