The final injustice: variation in end of life care in England

January 24, 2018

Source: Macmillan Cancer Support

Follow this link for  fulltext 

Date of publication: December 2017

Publication type: Report

In a nutshell: This report discusses the  experiences of people dying of cancer. The research shows that cancer patients approaching the end of their life face repeat emergency visits, and that these experiences are even worse for the poorest communities. The report highlights the variation in patient experience and discusses the need for improved access to care and support.

Length of publication: 26 pages



Transforming Cancer and End of Life Care

August 11, 2014

Source: Staffordshire Cancer and End of Life Care

Follow this link for the website

Date of publication: July 2014

Publication type: Website

In a nutshell: The Transforming Cancer and End of Life Care Programme is a new and pioneering programme to transform the way people with cancer or those at the end of their life are cared for and supported in Staffordshire and Stoke-on-Trent. Macmillan Cancer Support is working with four Clinical Commissioning Groups (CCGs), local authorities and NHS England.


Can we live with how we’re dying? Advancing the case for free social care at the end of life

July 9, 2014

Source: Macmillan Cancer Support

Follow this link for the full report

Date of publication: July 2014

Publication type: Report

In a nutshell: A new report from Macmillan Cancer Support argues that the NHS could save £69million each year by providing community care to allow cancer patients in England to die at home instead of in hospital.

Length of publication: 13 pages

The rich picture on people at end of life

August 24, 2012

Source: Macmillan Cancer Support

Follow this link to download the publication

Date of publication: August 2012

Publication type: Evidence-based summaries

In a nutshell: The rich pictures are engaging evidence-based summaries of the numbers, needs and experiences of different groupings within with the two million people living with cancer in the UK. They contain a range of evidence and insight including how many people are within the group, and what their typical needs and experiences are.

Length of publication:60 pages


24/7 palliative care nursing still patchy

July 14, 2010

Title: 24/7 palliative care nursing still patchy

Source: Nursing Times 2010 Vol. 106(27) p2

Date: July 2010

Publication type: News story

In a nutshell: A Freedom of Information Act request by MacMillan Cancer Support found that 24/7 community nursing support for end of life care patients is available in only half of the PCTs in England. This suggests there has been little in improvement in round the clock community nursing support since the publication of the National End of Life Care strategy in 2008.

Publication Length: 1 page

Some important notes: This article is not available online, contact your local health library for a copy of this article. Follow this link to find your local health library.

Profiling the Midhurst Macmillan Palliative Care project

November 25, 2009

Source: NHS Institute for Innovation and Improvement.

Date of publication: November 2009  

Publication type: Newsletter

In a nutshell:  A profile the Midhurst Macmillan Palliative Care project, a collaboration between Macmillan Cancer Support and NHS West Sussex.  Both organisations have worked together as the UK pilot for community based models of advanced palliative care which originated from Sweden and America. 

The objectives of the pilot are to:

  • provide models of care in patient’s homes, in community hospitals and in nursing homes
  • ensure patient choice is maximised
  • ensure acute hospital interventions and admissions are reduced
  • show that partnership working maximises use of resources and minimises costs.

Outcomes include: 

  • a doubling of the number of patients who can be supported in their choice to spend their final days at home
  • changes in preferred place of care/death 
  • estimated savings of £600,000 per annum. 

 Acknowledgement: NHS Institute for Innovation and Improvement