Palliative care for people with schizophrenia: a qualitative study of an under-serviced group in need

April 5, 2018

Source: BMC Palliative Care  2018; 17:53

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Date of publication: March 2018

Publication type: Journal Article

In a nutshell: People with schizophrenia are at risk of receiving poorer end of life care than other patients. They are often undertreated, avoid treatment and are about half as likely to access palliative care. There are limited options for end of life care for this under-serviced group in need. To ensure people with schizophrenia are well supported at the end of life a model of palliative care is required that offers both specialised services and capacity building within the pre-existing health workforce. Resources are needed to address the stigma and lack of services faced by this vulnerable group.

Length of publication: 11 pages

 

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Commissioning children’s palliative care in England: 2017 edition

December 19, 2017

Source: Together for Short Lives

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Date of publication: November 2017

Publication type: Report

In a nutshell: Together for Short Lives’ report on children’s palliative care services commissioned by NHS clinical commissioning groups (CCGs) and local authorities in England.  This report describes what CCGs and local authorities are claiming they do to plan, fund and monitor care for the 40,000 children with life-limiting and life-threatening conditions in England.  The aim is to use this information to help improve the commissioning process, to highlight gaps and start to identify where it is working well so others can learn how to improve commissioning.

Length of publication: 30 pages


Volunteer navigation partnerships: Piloting a compassionate community approach to early palliative care

July 17, 2017

Source: BMC Palliative Care 2017 17:2

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Date of publication: July 2017

Publication type:  Journal Article

In a nutshell: A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. The goal of the project was to improve quality of life by developing independence, engagement, and community connections.

Length of publication: 11 pages

 


End-of-life care for homeless people: A qualitative analysis exploring the challenges to access and provision of palliative care

July 17, 2017

Source: Palliative Medicine 2017 July 3. [e-pub ahead of print]

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Date of publication: July 2017

Publication type: Journal Article

In a nutshell: Being homeless or vulnerably housed is associated with death at a young age, frequently related to medical problems complicated by drug or alcohol dependence. Homeless people experience high symptom burden at the end of life, yet palliative care service use is limited.

Length of publication: 10 pages


Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals

November 4, 2015

Source: BMC Palliative Care 2015, v.14:56

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Date of publication: November 2015

Publication type: Research article

In a nutshell: The objective of this study was to explore when professionals in long-term care settings consider a person with dementia in need of palliative care. The findings from this study suggest that professionals across Europe have different opinions regarding the time point when to consider a person with dementia in need of palliative care.

Length of publication:6 pages

 


Living with and dying from advanced heart failure: understanding the needs of older patients at the end of life

November 4, 2015

Source: BMC Geriatrics October 2015

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Date of publication: October 2015

Publication type: Research article

In a nutshell: Old and very old patients with advanced heart failure often do not acknowledge the seriousness and severity of the disease. Their communication with physicians predominantly focuses on curative treatment. Therefore, aspects such as self-management of the disease, dealing with emergency situations and end-of-life issues should be addressed more prominently. An advanced care planning (ACP) programme for heart disease in older people could be an option to improve patient-centred care.

Length of publication: 21 pages

 


UK quality statements on end of life care in dementia: a systematic review of research evidence

November 3, 2015

Source: BMC Palliative Care 2015 v14.:51

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Date of publication: October 2015

Publication type: Research article

In a nutshell: The importance of a palliative approach in the care of people with dementia is recognised and there are national polices to enhance current care. In the UK implementation of these polices is promoted by the National Institute for Health and Care Excellence (NICE) Dementia Quality Standards (QS). Since publication of the QS new care interventions have been developed. This article critically reviews current research evidence relevant to EOL Quality Standards. The article concludes that Quality statements relevant to EOL care are useful to advance practice however they have a limited evidence base. High quality empirical work is needed to establish that the recommendations in these statements are best practice.

Length of publication: 15 pages