Empowering Better End‐of‐Life Dementia Care (EMBED‐Care): A mixed methods protocol to achieve integrated person‐centred care across settings

February 3, 2020

Source: International Journal of Geriatric Psychiatry 2020; 1-13

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Date of publication: January 2020

Publication type: Article

In a nutshell: This article looks at the Empowering Better End‐of‐Life Dementia Care (EMBED‐Care) programme, which has been developed to help those with dementia who need palliative care. The programme hopes to understand current and future need, develop novel cost‐effective care innovations, build research capacity, and promote international collaborations in research and practice to ensure people live and die well with dementia.

Length of publication: 13 pages

An EAPC white paper on multi-disciplinary education for spiritual care in palliative care

February 3, 2020

Source: BMC Palliative Care 2020; 19 (9): 1-10

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Date of publication: January 2020

Publication type: Article

In a nutshell: This article looks at the white paper written by members of the EAPC (European Association for Palliative Care) on the issue of spiritual care education for all palliative care professionals. It is a guide for all those involved in training and education of palliative care and spiritual care.

Length of publication: 10 pages

A systematic review and critical appraisal of quality indicators to assess optimal palliative care for older people with dementia

April 15, 2019

SourcePalliative Medicine 2019; 33 (4)

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Date of publicationMarch 2019

Publication typeJournal Article

In a nutshellThis article reviews and provides a summary of quality indicators for end-of-life care in dementia.

Length of publication: 15 pages

Music therapy in UK palliative and end-of-life care: a service evaluation

September 12, 2018

Source: BMJ Supportive & Palliative Care 2018; 8 (3): 282-284

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Date of publication: September 2018

Publication type: Short Report

In a nutshell: This service evaluation aims to identify the provision, role and perceived impact of UK music therapists in supporting patients receiving palliative and end-of-life care, their families and health and social care professionals.

Length of publication: 3 pages

Access to hospital and community palliative care for patients with advanced cancer: A longitudinal population analysis

September 12, 2018

Source: PLoS One 2018; 13 (8): e0200071

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Date of publication: August 2018

Publication type: Journal Article

In a nutshell: This study aims to establish the proportion of cancer patients receiving community or hospital based palliative care before death in the UK, to describe the duration and intensity of the palliative care provided, and the associations between palliative care provision and patient characteristics.

Length of publication: 12 pages

The ‘lived experience’ of palliative care patients in one acute hospital setting – a qualitative study

August 3, 2018

Source: BMC Palliative Care 2018, 17:91

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Date of publication: July 2018

Publication type: Journal Article

In a nutshell: The aim of this study was to explore the ‘lived experience’ of a group of patients with palliative care needs who had recently been in-patients in one acute hospital trust in the north-west of England.

Overall inpatient experience was viewed positively. Individual narratives illustrated compassionate and responsive care, with the patient at the centre. However, challenges were evident, particularly regarding over-stretched staff and resources, and modes of communication, which seemed to impact on patient experience.

Length of publication: 10 pages


Palliative care for people with schizophrenia: a qualitative study of an under-serviced group in need

April 5, 2018

Source: BMC Palliative Care  2018; 17:53

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Date of publication: March 2018

Publication type: Journal Article

In a nutshell: People with schizophrenia are at risk of receiving poorer end of life care than other patients. They are often undertreated, avoid treatment and are about half as likely to access palliative care. There are limited options for end of life care for this under-serviced group in need. To ensure people with schizophrenia are well supported at the end of life a model of palliative care is required that offers both specialised services and capacity building within the pre-existing health workforce. Resources are needed to address the stigma and lack of services faced by this vulnerable group.

Length of publication: 11 pages