‘Going for Gold’ helps to improve access to better end of life care

February 3, 2015

Source: Guidelines in Practice

Follow this link for the website

Date of publication: January 2015

Publication type: Web article

In a nutshell:Professor Keri Thomas reviews updated end of life care guidance and policy, challenging healthcare professionals to identify patients’ needs earlier and improve communication.



A tormented death: End of life care for people with dementia

June 28, 2012

Source: British Journal of Nursing 2012, 21(12), p723 – 727

Follow this link for the abstract

Date of publication: June 2012

Publication type: Article

In a nutshell: District nurses are often faced with difficulties when patients with dementia lack the capacity to express how they feel and the family has to make end-of-life decisions for the sufferer. Although 25% of palliative care is concerned with controlling physical symptoms, health professionals are sometimes faced with challenges when one comorbidity masks another. The GP-patient relationship is central to improving overall care for these vulnerable patients and there is a continual need for a workforce to be trained and empowered to provide care with precision. This article discusses the importance of correct diagnosis during end-of-life care and makes recommendations on how this can be achieved.

Length of publication:5 pages

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library

Acknowledgement: Internurse.com 

Critical success factors that enable individuals to die in their preferred place of death

February 28, 2012

Source: National End of Life Care Programme

Follow this link to download the full report

Date of publication: February 2012

Publication type: Report

In a nutshell: Based on contributions from end of life care commissioners and providers of services within seven Primary Care Trusts, the report is intended as a starting point to help those commissioning and planning services to see what has worked well in other areas.

The factors that are considered critical are (not ranked):

  • Strong commissioning and clinical leadership
  • Use of nationally recognised drivers that attract payment – LES and CQUINs
  • Flexible budgets and care packages
  • Use of nationally recognised tools or their local equivalent – ACP, GSF, LCP, PPC, ADAs and CHC Fast Track Pathway
  • Shared electronic information systems
  • Clearly defined access to 24 hour cover
  • Development of care homes
  • Use of facilitator roles and co-ordination of care across boundaries
  • Training to support staff delivering end of life care.

Length of publication: 88p.

Acknowledgement: National End of Life Care Programme

Sue Ryder Care takes on NHS role

April 26, 2011

Source: getreading

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Publication Date:April 2011

Publication Type: Web article

In a nutshell: Berkshire West Primary Care Trust transferred all specialist palliative care services to Sue Ryder on April 1, as part of the Department of Health’s Transforming Community Services.

Acknowledgements: Topix Local News

Transitions to palliative care in acute hospitals in England: qualitative study

April 26, 2011

Source: BMJ  2011; 342:d1773

Follow this link to access the full article

Date: March 2011

Publication Type: Article

Publication Length:7 pages

In a nutshell: This qualitative study explores how transitions to a palliative care approach are perceived to be managed in acute hospital settings in England. The article concludes that significant barriers to implementing a policy of structured transitions to palliative care in acute hospitals were identified by health professionals in both primary and secondary care. These need to be addressed if current UK policy on management of palliative care in acute hospitals is to be established.

Dying Matters – GP Pilot Project Evaluation

February 21, 2011

 Source:  Dying Matters

Follow this link  for the report in  fulltext

Follow this link  for a summary of the report

Date of publication:  October 2010

Publication type:  Report

In a nutshell:  This report by the Dying Matters coalition shows that with the right support Doctors can feel confident discussing death with patients.   In addition the pilot study had a positive effect on patient outcomes and increased the numbers of patients who communicated openly about their needs and preferences at the end of life.  At the outset of the pilot 60% of the participating GPs expressed concern that patients would find discussions about their choices at the end of their lives distressing however 90% of the patients continued the conversation once it has been initiated by their GP.

Length of publication:  50 pages

Discharge Planning for Palliative Care Patients: A Qualitative Analysis

January 24, 2011

Source: Journal of Palliative Medicine 2010, 14(1), p665-69.

Follow this link for the full text article

Date of publication: January 2011

Publication type: Article

In a nutshell: The aim of this study was to identify the range of health care experiences of family caregivers and patients who received palliative care consultations after they left the hospital, and to understand how PCTs might best prepare patients and caregivers for the post-hospital experience.

Length of publication: 5 pages