Empowering Better End‐of‐Life Dementia Care (EMBED‐Care): A mixed methods protocol to achieve integrated person‐centred care across settings

February 3, 2020

Source: International Journal of Geriatric Psychiatry 2020; 1-13

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Date of publication: January 2020

Publication type: Article

In a nutshell: This article looks at the Empowering Better End‐of‐Life Dementia Care (EMBED‐Care) programme, which has been developed to help those with dementia who need palliative care. The programme hopes to understand current and future need, develop novel cost‐effective care innovations, build research capacity, and promote international collaborations in research and practice to ensure people live and die well with dementia.

Length of publication: 13 pages

New guide for people with MND to enjoy hobbies is published

January 24, 2018

Source: ehospice

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Date of publication: January 2018

Publication type: News Item

In a nutshell: The MND Association has developed a new booklet for people living with motor neurone disease (MND) called Making the most of life with MND. Various requests from people living with MND for this quality of life resource led to the development of the new booklet.  The booklet highlights that interests do not necessarily have to stop with a diagnosis of MND, but adjustment may be needed. The guide may help people with MND think about activities they enjoy, or want to try, and how to approach these in a different way.

Length of publication: 1 page

Some important notes:  The booklet can be downloaded here

Effect of specialist palliative care services on quality of life in adults with advanced incurable illness in hospital, hospice, or community settings: systematic review and meta-analysis

July 17, 2017

Source: BMJ 2017; 357: j2925

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Date of publication: July 2017

Publication type: Journal Article

In a nutshell: This review found that specialist palliative care was associated with a small effect on QoL and might have a profound effect on patients with cancer and could be most effective if provided early and if it identifies through screening patients with unmet needs.

Length of publication: 14 pages


Football and dementia: A qualitative investigation of a community based sports group for men with early onset dementia

December 9, 2014

Source: Dementia

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Date of publication: November 2014

Publication type: Article

In a nutshell: This study investigates the impact of a weekly group providing sport and physical activities for men with early onset dementia established by Notts County Football in the Community (NCFC).The NCFC sessions provided a safe low-cost intervention with positive effects upon quality of life for both people with early onset dementia, their carers and the staff involved. This suggests that the service may be valuable to a wider range of people living in different areas.

Length of publication: 19 pages


Early palliative care for patients with advanced cancer: a cluster-randomised controlled trial

June 9, 2014

Source: The Lancet,  v.383, (9930), pg 1721 – 1730

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Date of publication: May 2014

Publication type: Article

In a nutshell: Patients with advanced cancer have reduced quality of life, which tends to worsen towards the end of life. This research project assessed the effect of early palliative care in patients with advanced cancer on several aspects of quality of life.  The results suggest that although the difference in quality of life was non-significant at the primary endpoint, this trial shows promising findings that support early palliative care for patients with advanced cancer.

Length of publication: 10 pages

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library


Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers

August 9, 2013

Source:  The Cochrane Library

Follow this link to download the review

Date of publication: June 2013

Publication type: Systematic Review

In a nutshell: A new review from the Cochrane Pain, Palliative and Supportive Care Group looked at the impact of home palliative care services on the chances of dying at home and on other outcomes for patients and their caregivers, such as symptom control and quality of life. The review team also aimed to compare resource use and costs associated with these services and summarize the current evidence on cost-effectiveness.

Length of publication: 281 pages

Midhurst Macmillan Community Specialist Palliative Care Service: Delivering end-of-life care in the community

August 9, 2013

Source: The King’s Fund

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Date of publication: August 2013

Publication type: Report

In a nutshell: the aim of this report was to establish whether community specialist palliative care services offering home nursing increased rates of death at home (avoiding hospitalisation) compared to other models. The review concluded that the evidence that palliative care home nursing for patients with life-limiting illnesses increased the rate of death at home without compromising symptoms, quality of life or increasing costs was inconclusive. The authors’ conclusions are suitably cautious given the limited evidence available.

Length of publication: 34p.