Quality standard: Care of dying adults in the last days of life

March 9, 2017

Source: National Institute for Health and Care Excellence (NICE)

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Date of publication: March 2017

Publication type: Quality Standard

In a nutshell: This quality standard covers the clinical care of adults (aged 18 and over) who are dying, during the last 2 to 3 days of life. It describes high-quality care in priority areas for improvement.

Length of publication: 22 pages

Some important notes: This quality standard does not cover care before the last few days of life, such as palliative care or ‘end of life care’ (often defined as care during the last year or so of a progressive disease), or care after death. These are included in NICE’s Quality Standard QS13 for end of life care for adults.


Outstanding end of life care recognised at GSF annual conference

October 13, 2014

Source: ehospice.com

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Date of publication: October 2014

Publication type: News article

In a nutshell: The National Gold Standards Framework Centre (GSF) has presented more than 100 awards recognising outstanding end of life care, to care homes, community hospitals, a hospice, a home care agency and a GP surgery, demonstrating the continuing improvement in the quality of care being provided across all settings.


Leadership alliance formed to respond to the independent review of the Liverpool Care Pathway

September 6, 2013

Source: NHS England

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Date of publication: August 2013

Publication type: Website

In a nutshell: A Leadership Alliance for the Care of Dying People (LACDP) is being set up under the chairmanship of Dr Bee Wee, National Clinical Director for End of Life Care at NHS England. The alliance, a coalition of regulatory and professional bodies aim to lead the way in creating and delivering the knowledge base, the education, training and skills and the long-term commitment needed to make high quality care for dying patients a reality, not just an ambition.

Using information systems to better support quality care at the end of life

February 1, 2013

Source: End of Life Journal 2013 v.3(1)

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Date of publication: January 2013

Publication type: Article

In a nutshell:  This article describes how recent changes to the End of Life Care Quality Assessment (ELCQuA) Tool (National End of Life Care Intelligence Network, 2012) and the End of Life Care Coordination: Core Content. National Information Standard (ISB 1580) (National End of Life Care Programme (NEoLCP), 2012a) will help to support all those striving to commission and deliver the best care to people nearing the end of life.

Length of publication: 3 pages

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.


ONS report shows wide variety in quality of care given in the last three months of life across England

December 21, 2012
Source: Office for National Statistics

Follow this link for the full-text report

Date of publication: November 2012

Publication type: Report

In a nutshell: Wide variations in the quality of end of life care across the country were revealed in a report published  by the Office for National Statistics (ONS). The first national VOICES survey asked recently bereaved people about the quality of care received by their loved ones in their last three months of life. Full statistical findings were published in July 2012. This report breaks down findings from the survey by Primary Care Trust (PCT) clusters. Results showed how:

  • PCT Clusters in the South West were regularly rated in the top 20 per cent across all areas of care. Bournemouth and Poole and Dorset PCT Cluster was rated particularly highly.
  • The North East and North West of the country were rated highly, particularly for quality of care, dignity and respect and patient care and support. The North of Tyne PCT Cluster scored highly across all areas.
  • The poorest ratings were given to London PCT Clusters, which were featured regularly in the bottom 20 per cent.

Length of publication: 12p.

Acknowledgement: National End of Life Care Programme

QIPP End of Life Care Event Report: Great Practice showcase

April 26, 2012

Source: National End of Life Care Programme

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Date of publication: April 2012

Publication type: Report

In a nutshell:  Showcasing best practice, this event brought together End of Life Care commissioners, End of Life Care education leads, service managers and clinical practitioners to share learning about the tools available to deliver the QIPP challenge in this sector.  Key learning is summarised and there is an overview of the presentations and links to case studies and marketplace exhibitors.

Length of publication: 15 pages

Communication diary to aid care at the end of life

April 26, 2012

Source: Nursing Times, 2012, 108, (17), p.24-27

Date of publication: April 2012

Publication type: Article

In a nutshell: This articles describes an action-research study which aimed to develop and test the “Relatives’/carers’ diary” tool from the Liverpool Care pathway.  The tool is aimed at reducing communication barriers between patient’s families or carers and healthcare staff in order to enable relatives to be able to participate usefully in end of life care and for healthcare staff to respond quickly to concerns or issues about all elements of care including pain management, quality of care.

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.

Length of publication: 4 pages