Evaluation toolkit – modelling a tool that will link learning to care delivery

July 23, 2012

Source: National End of Life Care Programme

Follow this link to download the evaluation toolkit

Date of publication: July 2012

Publication type: Case Study

In a nutshell: In 2010, as the result of a commission by East Midlands SHA, the University of Nottingham produced an evaluation toolkit aimed at helping stakeholders assess end of life care learning events in the East Midlands. A new questionnaire (Tool C) has been designed and tested to capture the impact of learning events on clinical outcomes over a period of time. It is the same format as Tools A and B with three additional questions. The first results from this pilot study are now available.

Length of publication: 18p.

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Bereaved family members’ assessments of the quality of end-of-life care: what is important?

January 28, 2012

Source:  Journal of Palliative Care, 01 December 2011, 27, (4), p.261-269

Follow this link for fulltext

Date of publication: December 2011

Publication type: Article

In a nutshell: Using qualitative interview data, this study identifies what is important to families of patients who have received end of life care.  The study indicates that care-givers need to distinguish between :

•           perceived substantive or tangible features of received care

•           interpretations of the causes and symbolic meanings of that care

•           personal and affective outcomes

The authors encourage

•           practitioners to develop understanding of how their behaviours are interpreted by families

•           organisations to support improvements in practice and decision making at all levels in order to facilitate better experiences for patients and families.

Length of publication: 9 pages

Some important notes:  Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library

Acknowledgement: Cinahl


What are patients’ priorities when facing the end of life? A critical review.

September 23, 2011

Source: International Journal of Palliative Nursing, 2011,17 (6), p.294-300

Follow this link  for fulltext 

Date of publication: June 2011

Publication type: Review, Article

In a nutshell:  The objective of this critical review was to investigate what patients’ priorities are when facing the end of life. A methodical and explicit search was made of academic databases to identify key articles. These articles were then critically appraised and the data was extracted and anylsed using an appropriate methodology. Findings showed that patients wanted:

• to understand and accept their changing health status

• to retain some normality in life

• to be supported by friends and family

• to know they will be taken care of after the death

• good and trusting relationships with health professionals.

Length of publication: 7 pages

Some important notes:

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.

Acknowledgement: BNI


Webinar – Coordinated services for End of Life Care 3.2.11 13:00

January 28, 2011

Source:  Department of Health

Date of event:  3rd February 2011 at 1pm.

In a nutshell:  This webinar is facilitated by Sophia Christie, DH Lead for the Quality, Innovation, Productivity & Presentation End of Life Care Workstream.  It is aimed at GP Commissioners, PCT and Community Professionals and members of the public who are interested in discovering how social care and health professionals can develop partnerships to improve care for patients with long-term conditions. 

Some important notes:  

Acknowledgement: National End of Life Care Programme


Problems and challenges for palliative care: What are the views of different stakeholders on the meso and macro level of the health system

February 22, 2010

Title: Problems and challenges for palliative care: What are the views of different stakeholders on the meso and macro level of the health system?

Source: Health Policy 2009,  93(1) p11-20

Follow this link for abstract

Date of Publication: November 2009

In a nutshell: This article examines the views of a wide range of representatives from organizations and institutions at the meso and macro level of the health system regarding palliative care in Germany. Using a questionnaire the main topics investigated included the most recent health care reform, quality in palliative care and living wills.

Length of Publication: 10 pages

Some important notes: Contact you local health library for a copy of this article. Follow this link to locate you local health library.

Acknowledgement: CINAHL


Consultation on the Palliative and End of Life Care Strategy for adults in Northern Ireland.

January 8, 2010

Title:  Consultation on the Palliative and End of Life Care Strategy for adults in Northern Ireland.

Source: Northern Ireland Executive Dept of Health, Social Services and Public Safety

Follow this link for the Public Consultation document in full text.

Follow this link for the Consultation Response questionnaire (pdf format).

Date of publication: December 2009

Publication type: News item.

In a nutshell:  The draft 5 year Strategy intends to ensure that everyone, from diagnosis to the advanced noncurative stage of disease, lives and dies well irrespective of their condition or care setting. It provides a vision and direction for service planning and delivery and considers current and predicted demographics, available intelligence and the results of existing consultation which have informed the implementation of other policy areas, Service Frameworks, and Priorities for Action Targets.  It also takes into account policy context from the wider UK and the Republic of Ireland.  Views are sought from all stakeholders by the deadline of 19.02.10.

Length of publication: The Public Consultation document is 95 pages, the Consultation Response questionnaire is 13 pages.

Acknowledgement: Omega, The National Association for End of Life Care


Key stakeholders’ experiences and views of the NHS End of Life Care Programme: findings from a national evaluation.

September 16, 2009

Source:  Palliative Medicine, 2009, 23/4, p.283-294   02692163

Follow this link for abstract.

Date of publication:  June 2009

Publication type:  Article.

In a nutshell: This article reports on the qualitative component of a national evaluation of the NHS End of Life Care Programme involving a range of stakeholders and focussing on implementation, impact and sustainability.  Positive results are discussed in the light of widely shared concerns about sustainability and this is discussed in light of the recently launched End of Life Care strategy.

Length of publication:  12 pages.

Some important notes:  Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.

Acknowledgement:  NHS Evidence.