Carmarthenshire Partnership Case Study: A flexible service tailored to patients’ needs

October 7, 2015

Source: Marie Curie

Follow this link for the case study

Date of publication: September 2015

Publication type: Case Study

In a nutshell: Marie Curie is delivering a tailored, flexible multi-visit service in Carmarthenshire to meet the needs of patients, their families and carers. Marie Curie set up a multi-visit service model, delivered by Healthcare Assistants, coordinated by Senior Nurses and supported by Registered Nurses. This also included an out-of-hours service.

Length of publication: 2 page


Increasing the number of people from a Black, Asian and Minority Ethnic (BAME) background accessing palliative care services

September 3, 2015

Source: NHS Improving Quality

Follow this link for the full-text report

Date of publication: August 2015

Publication type: Case study

In a nutshell: In September 2012, Marie Curie employed a keyworker at its Cardiff and the Vale hospice to work with people in local Black, Asian and Minority Ethnic communities to improve awareness of palliative care and to increase access.

Length of publication: 3 pages


Death and dying in Wales: An analysis of inconsistencies in access to specialist palliative care and hospital activity in the last year of life

January 9, 2015

Source: Marie Curie Cancer Care

Follow this link for the full report

Date of publication: December 2014

Publication type: Report

In a nutshell: This report analyses data from the NHS Wales Informatics Service (NWIS) regarding people who are recorded as having received specialist palliative care prior to their death for everyone who died in Wales in 2012. It reveals some striking findings relating to admissions and bed days in the last year of life and access to palliative care according to the cause of death and age, yet a smaller role for deprivation than anticipated.

Length of publication: 23p.


Together for health: End of Life Care Delivery Plan. Annual report 2014

November 10, 2014

Source: NHS Wales; Welsh Government

Follow this link for the full report

Date of publication: October 2014

Publication type: Report

In a nutshell: This publication of this first all-Wales annual report for end of life care is a major step towards making the NHS more accountable and visible to the people of Wales. For the first time it brings together in a single place simple, clear information on how services for those nearing the end of life are performing at a local and national level. It highlights the progress being made in Wales and identifies areas for future improvement. It demonstrates how health boards are taking local ownership through their delivery plans to improve end of life care and drive up standards of patient care in their communities.

Length of publication: 44p.



Preparing for tomorrow’s challenges: partnership working to improve palliative care for people with dementia

October 2, 2014

Source: ehospice

Follow this link for webpage

Date of publication: September 2014

Publication type: Press release

In a nutshell: In Blaenau Gwent in south east Wales, Hospice of the Valleys and Alzheimer’s Society are working together to improve palliative and end of life care for people with dementia. The Challenge Project is a two-year pilot, funded by the two charities, with the hope that – should it be successful – it will attract sustainable funding and be used as a model of care which can be replicated elsewhere.

Length of publication:  1 page


Dying at home: The role of social housing providers in suporting terminally ill in Wales

August 13, 2014

Source: Marie Curie Cancer Care

Follow this link for the executive summary

Date of publication: July 2014

Publication type: Report

In a nutshell: The study, undertaken in partnership with Community Housing Cymru, local authorities and Registered Social Landlords, looked into the different community-based models of care across Wales and whether the environment the person is in is suitable to both the person’s physical and social needs when diagnosed with a terminal illness.

The Marie Curie report makes a series of recommendations towards achieving these ends, which include:

  • Frontline staff should receive sufficient training to support tenants with end of life needs and to maintain their own wellbeing, including training in how to comfortably approach conversations about the end of life;
  • Creative and flexible uses of resources within sheltered housing and extra care schemes should be further pursued;
  • Local authorities should actively involve housing providers in planning community based approaches to meeting end of life needs;
  • Organisations responsible for setting policy, strategy and budgets should recognise the role that can be played by social housing providers in the provision of sustainable care and support for terminally ill people that more closely matches their needs and wants.

Length of publication: 21 pages

Some important notes: To download the full report follow this link Dying at home: The role of social housing providers in supporting terminally ill people in Wales’


Listening to dying people in Wales

May 6, 2014

Source: Marie Curie Cancer Care

Follow this link for the full report

Date of publication: April 2014

Publication type: Report

In a nutshell: Each individual will have personal wishes about where they wish to be cared for and where they wish to die.  They will also have many non-healthcare needs which impact on their well-being just as much as their healthcare does. In a new report, Listening to Dying People in Wales, Marie Curie Cancer Care looks at the methods currently in place for gathering experience feedback from terminally ill people and their families and carers. The report argues that if current services are to do the best for dying people in Wales they must find out about people’s experiences of the care they received at the end of their lives. Only then will those that plan and deliver services be able to make informed decisions based upon people’s needs.

Length of publication: 14 pages