End of Life Care Horizon Scanning Bulletin Volume 9 Issue 9

October 16, 2018
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First year experiences with a palliative out-patients structure for patients with COPD: a qualitative study of health professionals’ expectations and experiences

October 16, 2018

Source: BMC Palliative Care 2018; 17: 113

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Date of publication: October 2018

Publication type: Journal Article

In a nutshell: This study describes the development of a new palliative outpatients structure to improve the care of patients with advanced COPD. The study also explores health professionals’ expectations and experiences of the new structure.

Length of publication: 10 pages


Marie Curie launches new pilot scheme

October 16, 2018

Source: Marie Curie

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Date of publication: October 2018

Publication type: Press Release

In a nutshell: This press release provides details of a new pilot scheme launched by Marie Curie to give residents of nursing homes a voice on how they wish to be cared for at the end of their lives. In a shared decision-making process between the resident and a nurse at the home, a Coordinate My Care Plan is created and then digitally shared with all urgent care services ensuring that everyone knows how, when and where to manage the resident in times of need.

Length of publication: 1 page


Timing of referral for hospice-based palliative care varies nationwide

October 16, 2018

Source: Nursing Times 2018; 114 (11): 51

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Date of publication: November 2018

Publication type: Journal Article

In a nutshell: This article summarizes the results of a retrospective study looking at the time when people are referred for hospice care. The study provides detailed data on patterns of referrals to UK hospices and highlights variations in referral patterns depending on age, disease and location.

Length of publication: 1 page

Some important information: The full study on which this article is based can be viewed here.


How are physicians delivering palliative care? A population-based retrospective cohort study describing the mix of generalist and specialist palliative care models in the last year of life

October 15, 2018

Source: Palliative Medicine 2018; 32 (8): 1334-1343

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Date of publication: September 2018

Publication type: Journal Article

In a nutshell: This study describes the models of physician-based palliative care services delivered to patients in the last 12 months of life in Ontario, Canada, looking particularly at the mix of generalist and specialist palliative care.

Length of publication: 10 pages


What role do death doulas play in end-of-life care? A systematic review

October 15, 2018

Source: Health & Social Care in the Community 2018; Sep 26. [Epub ahead of print]

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Date of publication: September 2016

Publication type: Systematic Review

In a nutshell: This systematic review explores the current literature surrounding the use of death doulas in end-of-life care and the potential implications for models of care delivery. This study highlights the lack of clarity and consistency in the role and the limited amount of formal academic studies.

Length of publication: 13 pages


Is end-of-life care a priority for policymakers? Qualitative documentary analysis of health care strategies

October 15, 2018

Source: Palliative Medicine 2018; 32 (9): 1474-1486

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Date of publication: October 2018

Publication type: Journal Article

In a nutshell: This study looks at the extent to which regional Health and Wellbeing Boards have identified end-of-life care needs in their local populations and if they have prioritised end-of-life care within their respective strategies. The study concludes that only half of Health and Wellbeing Board strategies mention end-of-life care, few prioritise it and none cite evidence for effective interventions.

Length of publication: 13 pages