UK quality statements on end of life care in dementia: a systematic review of research evidence

November 3, 2015

Source: BMC Palliative Care 2015 v14.:51

Follow this link for the full text article

Date of publication: October 2015

Publication type: Research article

In a nutshell: The importance of a palliative approach in the care of people with dementia is recognised and there are national polices to enhance current care. In the UK implementation of these polices is promoted by the National Institute for Health and Care Excellence (NICE) Dementia Quality Standards (QS). Since publication of the QS new care interventions have been developed. This article critically reviews current research evidence relevant to EOL Quality Standards. The article concludes that Quality statements relevant to EOL care are useful to advance practice however they have a limited evidence base. High quality empirical work is needed to establish that the recommendations in these statements are best practice.

Length of publication: 15 pages




NICE support for commissioners of dementia care

April 22, 2013

Source: NICE

Follow this link for the guidance

Date of publication: April 2013

Publication type: Guidelines

In a nutshell: The National Institute for Health and Care Excellence (NICE) has issued a guide to support the commissioning of high-quality, evidence-based care of people who have dementia. The NICE support for commissioning dementia care provides practical advice for commissioners to improve the integration of health and social care. This will help ensure that more people with dementia receive an early diagnosis and can access the care and support that they, and their carers, need to live well and independently with dementia for as long as possible. Support for commissioning will help commissioners achieve the outcomes set out in the clinical commissioning group outcomes indicator set and other national health and social care outcomes frameworks. The commissioning tool that accompanies this guide enables commissioners to show how well they are performing against a range of outcome measures that together demonstrate how well the whole system is working.

End of life care in adults pathway published on Map of Medicine

February 21, 2011

 Source:  Map of Medicine 

Follow this link for fulltext

Date of publication:  December 2010

Publication type:  News item

In a nutshell:  This new pan-specialty pathway extends beyond purely palliative care pathway that it replaces.  It incorporates physical needs, practical and social needs, psychological and spiritual needs, support for families and patients priorities and preferences.  It is based on high-quality guidance from national sources including the Gold Standards Framework and NICE.

2010 Annual Evidence Update on End of Life Care

November 25, 2010

Source: NHS Evidence

Follow this link to view the update in full.

Date of publication: November 2010

Publication type: Annual Evidence Update

In a nutshell:  This year’s Annual Evidence Update (AEU) produced by the commissioning and innovation and improvement specialist collections is on end of life care. The AEU aims to bring together the latest knowledge and evidence about contemporary aspects of end of life care. Patient experience, measurement, pathways and access to services are all covered.

Some important notes: To get full access to the resource you will need an NHS Athens account. Please click here to register for an account. If you need further help please  click here to contact your local NHS library.

Health Department to report on quality of palliative care for cancer patients

March 23, 2010

Title: Health Department to report on quality of palliative care for cancer patients

Source: Help the Hospices

Follow this link for web article

Date of Publication: March 2010

Publication Type: Web article

In a nutshell: The Government is planning to publish a report which will evaluate the progress made regarding the implementation of NICE guidance on palliative care for adults with cancer. The report should be published by June 2010

Length of Publication: 1 page

Palliative care partnerships

January 8, 2010

Title:  Palliative care partnerships

SourceNursing Management

Follow this link for fulltext. (NHS Athens password is required)

Date of publication:  October 2009

Publication type: Journal article.

In a nutshell:  Research undertaken jointly by the Commission for the Compact and Help the Hospices indicates that there are issues which need to be addressed if partnerships are to achieve excellence.  By using the ‘Compact’ which is a set of guidelines for partnership working for voluntary and public sector bodies, relationships between organisations can be enhanced with clear benefits for patients.

 The article focuses on six important themes which emerged from the study:

* Funding and contracting arrangements.

* Maintaining the independence of hospices.

* Expertise of practitioners.

* Need for proactive approaches to care.

* Role of volunteers.

* Importance of personal relationships.

Length of publication: 4 pages.

NICE Issues Supplementary Advice for NICE Appraisal Committees tasked with appraising treatments which may extend life, at the end of life.

August 25, 2009

Source: National Institute for Health & Clinical Excellence

Follow this link for supplementary advice to the Appraisal Committees, details of the consultation responses and the summary response to the consultation.

Date of publication:  August 2009

Publication type: webpages

In a nutshell: In order to support the Institute’s Appraisal Committees appraisal of treatments which may extend life at the end of life,  NICE have published the following:

  • Supplementary advice to the Appraisal Committees   (addendum to section 6.2.25 of the Guide to the Methods of Technology Appraisal which was approved by Institute’s Board on 17 December 2008.
  • Consultation responses – View on the proposition
  • Consultation responses – Wording in section 2
  • Consultation responses – Alternative methods
  • Consultation responses – General comments
  • Summary response to consultation
  • Acknowledgement:  Palliative Care Matters website.