Interactive sessions bring joy to hospice patients

Source: Marie Curie

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Date of publication: August 2022

Publication type: Press Release

In a nutshell: The Marie Curie Hospice, Cardiff and the Vale have trialled using a Magic Table 360, which is an interactive projector to help support and engage with their patients. The projector can be used on all surfaces including ceilings and walls, and has a wide range of interactive activities. The Allied Health Professional team are now looking to raise funds to be able to secure a three year contract for the device.

Length of publication: 1 page

Marie Curie joins Diverse Cymru for Welsh Government funded bereavement project

Source: Marie Curie

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Date of publication: March 2022

Publication type: Press Release

In a nutshell: A project has been launched in Wales between Marie Curie and Diverse Cymru to support bereaved people across the country. The Wales Bereavement Information and Support Service (BISS) Project will aim to target and connect with harder to reach communities to raise awareness of the services that exist, including wider end of life care.

Length of publication: 1 page

Hospice UK launches report on the future of palliative care in Wales

Source: Hospice UK

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Date of publication: March 2022

Publication type: Press Release

In a nutshell: Hospice UK launched it’s ‘Future Vision Cymru: Seamless and Sustainable’ report. The report looks at the challenges and opportunities currently facing specialist palliative care providers in Wales.

Length of publication: 1 page

Some important notes: Find the Seamless and Sustainable report here

Written Statement: Update on Palliative and End of Life Care

Source: Welsh Government services and information

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Date of publication: March 2021

Publication type: Statement

In a nutshell: This is a statement by the Welsh Minister for Health and Social Services following the key issues raised during the debate on support for palliative care during the pandemic held on 3 February 2021 and on wider palliative and end of life care progress.

Length of publication: 1 page

Inequalities in access to hospice and palliative care

Source: Cross Party Group on Hospices and Palliative Care

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Date of publication: July 2018

Publication type: Report

In a nutshell: This report finds that people with terminal illnesses and life-limiting conditions in Wales – especially dementia, heart failure and neurological conditions – face a range of barriers in accessing hospice and palliative care. It argues that unequal access to appropriate care for people with terminal and life-limiting conditions is influenced by a range of complex factors. These include people’s diagnoses, age and where they live.

Length of publication: 44 pages

 

What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death

Source: Palliative Medicine 2017 Oct 10. [Epub ahead of print].

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Date of publication: October 2017

Publication type: Journal Article

In a nutshell: The study’s aim was to project where people will die from 2015 to 2040 across all care settings in England and Wales.  It is expected that annual deaths are expected to increase and more deaths are likely to occur in care homes.  More investment in care homes and end of life provision is needed otherwise hospital deaths will increase.

Length of publication: 8 pages

 

Quality standard: End of life care for infants, children and young people

Source: National Institute for Health and Care Excellence (NICE)

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Date of publication: September 2017

Publication type: Quality Standard

In a nutshell: This quality standard covers end of life care for infants, children and young people (from birth to 18 years) who have a life-limiting condition. Life-limiting conditions are those that are expected to result in an early death for the person. It also covers support for family members and carers. It describes high-quality care in priority areas for improvement.

Length of publication: 26 pages

Carmarthenshire Partnership Case Study: A flexible service tailored to patients’ needs

Source: Marie Curie

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Date of publication: September 2015

Publication type: Case Study

In a nutshell: Marie Curie is delivering a tailored, flexible multi-visit service in Carmarthenshire to meet the needs of patients, their families and carers. Marie Curie set up a multi-visit service model, delivered by Healthcare Assistants, coordinated by Senior Nurses and supported by Registered Nurses. This also included an out-of-hours service.

Length of publication: 2 page

Increasing the number of people from a Black, Asian and Minority Ethnic (BAME) background accessing palliative care services

Source: NHS Improving Quality

Follow this link for the full-text report

Date of publication: August 2015

Publication type: Case study

In a nutshell: In September 2012, Marie Curie employed a keyworker at its Cardiff and the Vale hospice to work with people in local Black, Asian and Minority Ethnic communities to improve awareness of palliative care and to increase access.

Length of publication: 3 pages

 

Death and dying in Wales: An analysis of inconsistencies in access to specialist palliative care and hospital activity in the last year of life

Source: Marie Curie Cancer Care

Follow this link for the full report

Date of publication: December 2014

Publication type: Report

In a nutshell: This report analyses data from the NHS Wales Informatics Service (NWIS) regarding people who are recorded as having received specialist palliative care prior to their death for everyone who died in Wales in 2012. It reveals some striking findings relating to admissions and bed days in the last year of life and access to palliative care according to the cause of death and age, yet a smaller role for deprivation than anticipated.

Length of publication: 23p.

 

Together for health: End of Life Care Delivery Plan. Annual report 2014

Source: NHS Wales; Welsh Government

Follow this link for the full report

Date of publication: October 2014

Publication type: Report

In a nutshell: This publication of this first all-Wales annual report for end of life care is a major step towards making the NHS more accountable and visible to the people of Wales. For the first time it brings together in a single place simple, clear information on how services for those nearing the end of life are performing at a local and national level. It highlights the progress being made in Wales and identifies areas for future improvement. It demonstrates how health boards are taking local ownership through their delivery plans to improve end of life care and drive up standards of patient care in their communities.

Length of publication: 44p.

 

 

Preparing for tomorrow’s challenges: partnership working to improve palliative care for people with dementia

Source: ehospice

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Date of publication: September 2014

Publication type: Press release

In a nutshell: In Blaenau Gwent in south east Wales, Hospice of the Valleys and Alzheimer’s Society are working together to improve palliative and end of life care for people with dementia. The Challenge Project is a two-year pilot, funded by the two charities, with the hope that – should it be successful – it will attract sustainable funding and be used as a model of care which can be replicated elsewhere.

Length of publication:  1 page

 

Dying at home: The role of social housing providers in suporting terminally ill in Wales

Source: Marie Curie Cancer Care

Follow this link for the executive summary

Date of publication: July 2014

Publication type: Report

In a nutshell: The study, undertaken in partnership with Community Housing Cymru, local authorities and Registered Social Landlords, looked into the different community-based models of care across Wales and whether the environment the person is in is suitable to both the person’s physical and social needs when diagnosed with a terminal illness.

The Marie Curie report makes a series of recommendations towards achieving these ends, which include:

• Frontline staff should receive sufficient training to support tenants with end of life needs and to maintain their own wellbeing, including training in how to comfortably approach conversations about the end of life;
• Creative and flexible uses of resources within sheltered housing and extra care schemes should be further pursued;
• Local authorities should actively involve housing providers in planning community based approaches to meeting end of life needs;
• Organisations responsible for setting policy, strategy and budgets should recognise the role that can be played by social housing providers in the provision of sustainable care and support for terminally ill people that more closely matches their needs and wants.

Length of publication: 21 pages

Some important notes: To download the full report follow this link ‘Dying at home: The role of social housing providers in supporting terminally ill people in Wales’

 

Marie Curie works to improve access to palliative care for BAME communities

Source: Marie Curie Cancer Care

Follow this link for the press release

Date of publication:  August 2014

Publication type: Press release

In a nutshell: A report released from Marie Curie Cancer Care has found that palliative care in the Black, Asian and Minority Ethnic (BAME) communities across Cardiff and the Vale is underused. Research carried out by Marie Curie with local communities  has found that minority ethnic communities are less likely to choose to use their hospice service in Wales because of concerns about language, facilities for religious worship and dietary requirements. The report also revealed that despite being aware of hospices, communities felt GPs can also be reluctant to suggest palliative care options to ethnic minorities.

Some important notes: The report can be requested by emailing mariecurie@equinoxcommunications.co.uk