Palliative and End of Life Care Statutory Guidance for Integrated Care Boards (ICBs)

August 3, 2022

Source: NHS England

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Date of publication: July 2022

Publication type: Guidance

In a nutshell: NHS England have developed this guidance to ensure that people who need
palliative and end of life care (PEoLC), are able to access and receive high quality
personalised care and support.

Length of publication: 15 pages


Guidance for family about comfort care in dementia: a comparison of an educational booklet adopted in six jurisdictions over a 15 year timespan

June 1, 2022

Source: BMC Palliative Care (2022) 21:76

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Date of publication: May 2022

Publication type: Article

In a nutshell: A family booklet on on comfort care has been adapted and adopted by several European jurisdictions since it was fist published in Canada in 2005 to support the family and caregivers of people with dementia to support end of life decision making.

Length of publication: 8 pages


Universal Principles for Advance Care Planning (ACP)

April 1, 2022

Source: NHS England

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Date of publication: March 2022

Publication type: Guidance

In a nutshell: This guidance sets out six high level principles for advance care planning in England. It is for anyone involved in supporting advance care planning.

Length of publication: 22 pages


Hospice UK releases third edition of Care After Death guidance for professionals

October 19, 2020

Source: Hospice UK

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Date of publication: September 2020

Publication type: Guidance

In a nutshell: Hospice UK have now released a 3rd updated edition of the “Care after Death Guidance: for staff responsible for care after death.” It can be found by following the link above.

Length of publication: 47 pages


COVID-19 and Palliative, End of Life and Bereavement Care in Secondary Care

April 6, 2020

Source: Association for Palliative Medicine of Great Britain and Ireland

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Date of publication: March 2020

Publication type: Guidance

In a nutshell: This guidance by the Northern Care Alliance NHS Group and the Association for Palliative Medicine of Great Britain and Ireland to ensure that appropriate guidance and sharing of good practice occurs.

Length of publication: 24 pages


First book on neonatal palliative care for nurses is published

March 9, 2020

Source: Hospice UK

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Date of publication: February 2020

Publication type: News Item

In a nutshell: Neonatal Palliative Care for Nurses is the first ever textbook to be written that offers guidance on caring for babies with life-limiting conditions. It is written by international and authoritative neonatal palliative care experts and is presented in two parts.

Length of publication: 1 page


Rehabilitative Palliative Care: Enabling people to live fully until they die. A challenge for the 21st century

July 27, 2015

Source: hospice UK

Follow this link to download the report

Date of publication: July 2015

Publication type: Report

In a nutshell: This publication provides evidence of the benefits and effectiveness of rehabilitative palliative care, and includes guidance and tools to support its implementation. Rehabilitative Palliative Care  is an interdisciplinary approach in which all members of the team, including nurses, doctors, psychosocial practitioners and allied health professionals, work collaboratively with the patient, their relatives and carers to support them to achieve their personal goals and priorities.

Length of publication: 68p.

 


Interim guidance: Caring for people in the last days and hours of life

December 27, 2013

Source: NHS Scotland

Follow this link for the full report

Date of publication: December 2013

Publication type: Guidelines

In a nutshell: It has been announced that the Liverpool Care Pathway (LCP) will be phased out in Scotland over the next year. The Scottish Government has accepted the recommendations from the Living and Dying Well National Advisory Group. This follows the Neuberger review of the LCP in England, which found the framework has not always been used appropriately. Interim guidance on caring for people in the last days and hours of life has also been issued to all Scottish health boards, which will be followed until a new set of guidelines on best practice is available in 2014.The guidance places a strong emphasis on good, consistent communications by medical professionals with families and loved ones of patients.

Length of publication: 12 pages


Treatment and care towards the end of life: good practice in decision making.

May 27, 2010

Title: Treatment and care towards the end of life: good practice in decision making. 

Source: GMC website

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Follow this link to view the guidance online.

Follow this link to view the contents page online.

Date of publication: May 2010

Publication type:  Practice Guidelines

In a nutshell: New guidance on EoLC for doctors, published 20 May 2010, comes into effect on 1 July 2010.  Addresses all issues concerning treatment and management of patients at the end of life by Doctors and multi-disciplinary teams and agencies.  The guidance provides details of decision-making models and explains how to apply them.  Advance care planning is addressed and the requirements around making and recording decisions.  Legal aspects of therapies, treatments and resuscitation are addressed.   This guidance replaces the booklet Withholding and withdrawing life-prolonging treatments (2002) and expands on the guidance in Consent, patients and doctors making decisions together.

Length of publication:  91 pages


Doctors should avoid making assumptions about patients’ choices at the end of life

May 24, 2010

Title: Doctors should avoid making assumptions about patients’ choices at the end of life

Source: British Medical Journal

Follow this link for the abstract

Date of publication: May 2010

Publication Type: Article

In a nutshell: The General Medical Council has issued comprehensive new guidance for doctors on end of life care, including advice on how to decide whether to attempt cardiopulmonary resuscitation (CPR), and when to withhold or withdraw artificial nutrition and hydration.

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