Source: NHS England
Date of publication: March 2022
Publication type: Guidance
In a nutshell: This guidance sets out six high level principles for advance care planning in England. It is for anyone involved in supporting advance care planning.
Length of publication: 22 pages
Leave a Comment » | 
England, Guidelines, United Kingdom, Volume 12 Issue 12 | Tagged: ACP, Advance Care Planning, England, Guidance, NHS England, Universal principles | 
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Posted by zareenamulla
Source: BMJ Supportive and Palliative Care 2021, (11): 454-460
Date of publication: November 2021
Publication type: Research Article
In a nutshell: This research looks at the Hospice at Home services (HAH) which allows a patient to be cared for and die at home if that is their wish. This national 2017 survey looks at and compares the features of HAH services and help to highlight the key enablers to service provision.
Length of publication: 7 pages
Leave a Comment » | Article, Death, Health services research, Hospice Care, Palliative Care, Patient Choice, Research, United Kingdom, Volume 12 Issue 8 | Tagged: England, HAH, Hospice at home, Hospice UK, National Association for Hospice at Home, National survey, UK | Permalink
Posted by zareenamulla
Source: Public Health England
Date of publication: June 2021
Publication type: Official Statistics
In a nutshell: This is an update which provides an overview of palliative and end of life care in England in various areas of the country.
Length of publication: 1 page
Leave a Comment » | Volume 12 Issue 3 | Tagged: End of Life Care, England, Official statistics, Palliative Care, Profiles, Statistical Data, Statistics | Permalink
Posted by zareenamulla
Source: NHS Improving Quality
Follow this link for the full report
Date of publication: June 2014
Publication type: Case study
In a nutshell: University Hospital Southampton NHS Foundation Trust, one of England’s largest Trusts, includes an inpatient NHS hospice, community specialist palliative care team, day care and day case services, acute hospital palliative care team, bereavement service and education. The Transform Programme enabled the Trust to bring together a continual programme of quality improvement, building on the 2008 End of Life Care Strategy
Length of publication: 2 pages
Leave a Comment » | Change, Contents, England, Hospice Care, Palliative Care, Patient Centred Care, Patient Choice, Publication type, Report, Strategic change, Terminal Care, Volume 6 Issue 7 | Tagged: Case Study, End of Life Care, England, Transform Programme | Permalink
Posted by hmedley99
Source: NHS Improving Quality
Follow this link for the website
Date of publication: June 2014
Publication type: Website
In a nutshell: The Transform Programme aims to improve the quality of end of life care in hospitals across England, enabling more people to be supported to live and die well in their preferred place.
The programme encourages hospital Trusts to develop a strategic approach to reaching their aim to improve quality of care. This includes:
– The involvement of of patients, carers and the public
– Developing staff skills, competencies and confidence through education and development
– Quality assurance, measurement and evaluation
The Transform Programme aims to improve the quality of end of life care within acute hospitals across England, enabling more people to be supported to live and die well in their preferred place.
The programme focuses on both the quality of care provided by acute hospitals, as well as the important role acute hospitals have, as one of many organisations that may provide care for people who are approaching end of life. End of life care includes care for people in their last years, months and days of life as well as care after death.
The Transform Programme aims to improve the quality of end of life care within acute hospitals across England, enabling more people to be supported to live and die well in their preferred place.
The programme focuses on both the quality of care provided by acute hospitals, as well as the important role acute hospitals have, as one of many organisations that may provide care for people who are approaching end of life. End of life care includes care for people in their last years, months and days of life as well as care after death.
The Transform Programme aims to improve the quality of end of life care within acute hospitals across England, enabling more people to be supported to live and die well in their preferred place.
The programme focuses on both the quality of care provided by acute hospitals, as well as the important role acute hospitals have, as one of many organisations that may provide care for people who are approaching end of life. End of life care includes care for people in their last years, months and days of life as well as care after death.
The Transform Programme aims to improve the quality of end of life care within acute hospitals across England, enabling more people to be supported to live and die well in their preferred place.
The programme focuses on both the quality of care provided by acute hospitals, as well as the important role acute hospitals have, as one of many organisations that may provide care for people who are approaching end of life. End of life care includes care for people in their last years, months and days of life as well as care after death.
Leave a Comment » | Change, Commissioning, Contents, England, Innovations, Organisational change, Palliative Care, Patient Centred Care, Patient Choice, Publication type, Strategic change, Terminal Care, Volume 6 Issue 7, Website | Tagged: End of Life Care, England, Patient Choice, Quality of Care, Service Improvement, Transform Programme | Permalink
Posted by hmedley99
Source: National End of Life Intelligence Network
Follow this link for the website
Date of publication: April 2014
Publication type: Website
In a nutshell: End of Life Care Profiles published by The National End of Life Care Intelligence Network, draw together a wide range of information to give an overview of variations in cause and place of death (by age and sex) for each CCG in England. The aim is for the new profiles to help commissioners and providers of end of life care get a clearer picture of the end of life care needs of their local populations so they can plan and deliver services.
Leave a Comment » | Commissioning, Contents, England, Palliative Care, Patient Centred Care, Publication type, Terminal Care, Volume 6 Issue 4/5, Website | Tagged: Clinical Commissioning Groups, Commissioning, End of Life Care, England, Profiles | Permalink
Posted by hmedley99
Source: AQuA
Follow this link for the website
Date of publication: April 2013
Publication type: Website
In a nutshell: AQuA has published End of Life Care Local Authority Profiles 2012 , which present over 50 indicators for each local authority in England. They include social care indicators for the first time. Also available are the End of Life Care Primary Care Trust (PCT) Profiles which present over 40 indicators.
Leave a Comment » | Commissioning, England, Health services research, Publication type, Volume 5 Issue 5, Website | Tagged: End of Life Care, England, Local Authority Profiles, Performace Indicators, Primary Care Trust | Permalink
Posted by hmedley99
Source: National End of Life Care Intelligence Network
Follow this link to download the report
Date of publication: February 2013
Publication type: Report
In a nutshell: This report describes the patterns in mortality from cardiovascular diseases in England, highlighting variation in place and cause of death by age, sex, socioeconomic deprivation and disease group. This report was commissioned to support the development of a new national strategy for tackling cardiovascular diseases. It will be of interest to commissioners and providers of end of life care focused on supporting and caring for patient with cardiovascular disease, as well as the patients themselves, their carers and families.
Length of publication: 38p.
Leave a Comment » | Commissioning, England, Health services research, Palliative Care, Patient Centred Care, Publication type, Report, Research | Tagged: Cardiovascular Disease, Commissioning, England, Epidemiology | Permalink
Posted by hmedley99
Source: National Council for Palliative Care
Follow this link for the full-text report
Date of publication: November 2012
Publication type: Report
In a nutshell: This report calls on Health and Wellbeing Boards to join up support for people approaching the end of life, based on research from September-October 2012, in which the boards’ emerging strategies were reviewed by NCPC. NCPC have produced a What about end of life care? Action Sheet to help boards consider end of life care and support – visit www.ncpc.org.uk/influencing-toolkit for more information.
Length of publication: 8 pages
Leave a Comment » | Commissioning, England, Palliative Care, Patient Centred Care, Patient Choice, Publication type, Report, Strategic change, Terminal Care, Volume 5 Number 1, Wales | Tagged: Dignity, End of Life Care, England, Good Practice, Health and Wellbeing Boards, National Council for Palliative Care, Older People, Patient Choice, Strategic Framework, Toolkit, Wales | Permalink
Posted by hmedley99
Source: National End of Life Care Programme
Follow this link for case study report
Date of publication: October 2012
Publication type: Website
In a nutshell: Bedfordshire’s Partnership for Excellence in Palliative Support (PEPS) pilot is helping to integrate all end of life care services in the area. It is based on a ‘memorandum of understanding’ between 15 local organisations and a central electronic register that all individuals sign up to. So far two thirds of people’s deaths have taken place in their usual homes. The proportion of home deaths in the area has risen and hospital deaths fallen.
Length of publication: 1p.
Acknowledgement: National End of Life Care Programme
Leave a Comment » | Bereavement, Change, Change management, Commissioning, Contents, Death, England, Innovations, Organisational change, Palliative Care, Patient Centred Care, Patient Choice, Publication type, Reorganisation, Terminal Illness, United Kingdom, Volume 4 Issue 11, Website | Tagged: End of Life Care, England, Home Death, Integrated Care, Sue Ryder Care | Permalink
Posted by hmedley99
Source: Leeds Community Healthcare
Follow this link to download the report
Date of publication: October 2012
Publication type: Trust report
In a nutshell: The new Leeds Strategic Framework for Adult Palliative and End of Life Care 2010-2015 provides a clear direction for developing and improving palliative care and end of life services, across the city, during the five years 2010 – 2015. The aspiration for Leeds is to increase the percentage of patients who are cared for and die in their preferred place of care. This will mean reducing the number of deaths in a hospital setting, and increasing those at home.
Length of publication: 13p.
Leave a Comment » | Contents, Death, England, NHS Trust document, Palliative Care, Patient Centred Care, Patient Choice, Publication type, Strategic change, Terminal Illness, United Kingdom, Volume 4 Issue 11 | Tagged: Domiciliary Palliative Care, End of Life Care, England, Home Death, Leeds, Palliative Care, Patient Choice, Preferred Place of Care, Preferred Place of Death, Strategic Framework | Permalink
Posted by hmedley99
Source: International Journal of Palliative Nursing 2012 v.18(6) p275-81
Follow this link to download the article
Date of publication: June 2012
Publication type: Article
In a nutshell: This paper reports on a system of managing admissions and discharges from a specialist palliative day hospice (SPDH) in the south of England. SPDH is a well established component of palliative care provision in the UK, but studies have rarely addressed issues around admission and discharge. The most significant finding from this study was the emotional and psychological impact on the patients of taking the break. Discharge from SPDH is known to be a difficult and sensitive issue, especially when patients are living with life-limiting illnesses that can change quickly. The patients in this study all had some form of dependency on the service and four of the five would have chosen to continue attending if they could.They experienced deterioration in psychological and physical wellbeing during the period in which they did not attend.
Length of publication: 7 pages
Some important notes: This article is available in full text to all NHS Staff using Athens, for more information about accessing full text follow this link to find your local NHS Library
Leave a Comment » | Article, Contents, England, Health services research, Hospice Care, Palliative Care, Patient Centred Care, Patient Choice, Publication type, Research, Strategic change, Terminal Care, Terminal Illness, United Kingdom, Volume 4 Issue 10 | Tagged: England, Hospice Care, Patient Admission, Patient Discharge, Psychological Well-being, Terminally Ill | Permalink
Posted by hmedley99
Source: Palliative Medicine v.26(3) p.232-241
Follow this link for the abstract
Date of publication: April 2012
Publication type: Article
In a nutshell: This article aims to explore understandings of, and perceived roles in relation to, palliative care provision amongst generalist and specialist health care providers in England and New Zealand.
Length of publication: 10 pages
Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library
Leave a Comment » | Article, Change management, England, Health services research, New Zealand, Organisational development, Palliative Care, Publication type, Research, Volume 4 Issue 4 | Tagged: End of Life Care, England, Generalist, New Zealand, Palliative Care, Palliative Medicine, Policy Development, Specialism | Permalink
Posted by hmedley99
Title: Comparing the costs of alternative models of end-of-life care
Source: Journal of Palliative Care 2011 Summer; 27(2), p126-33
Follow this link for article abstract
Date of publication: Summer 2011
Publication type: Article
In a nutshell: This study explores the financial consequences of decreased acute care utilisation and expanded community-based care for patients at the end of life in England. Results suggest that reducing reliance on acute care could release resources and better meet peoples’ preferences.
Length of publication: 8 pages
Acknowledgements: Pubmed
Contact your local health library to obtain a copy of this article. Follow this link to find your local health library.
Leave a Comment » | Article, England, Health services research, Publication type, Research, Terminal Illness, Volume 3 Issue 11 | Tagged: Acute Palliative Care, Community Palliative Care, England, Funding, Health Economics, Palliative Care | Permalink
Posted by hmedley99
Mass Media Palliative Care News
End of Life Care Horizon Scanning 