Increasing the number of people from a Black, Asian and Minority Ethnic (BAME) background accessing palliative care services

Source: NHS Improving Quality

Follow this link for the full-text report

Date of publication: August 2015

Publication type: Case study

In a nutshell: In September 2012, Marie Curie employed a keyworker at its Cardiff and the Vale hospice to work with people in local Black, Asian and Minority Ethnic communities to improve awareness of palliative care and to increase access.

Length of publication: 3 pages

 

When dying at home is not an option: Exploration of hostel staff views on palliative care for homeless people

Source: International Journal of Palliative Nursing 2015 v.21(5) p236-44

Follow this link for the article abstract

Date of publication: May 2015

Publication type: Article

In a nutshell: The Department of Health in the UK suggests that hostel staff are the most appropriate key workers for their dying homeless residents and that hospital based palliative care maybe the best way forward. However, little is known about the views of hostel staff with regard to this. The article findings clearly lend support to the suggestion that hostel workers probably are indeed the most appropriate people to sup­port a dying homeless person. However, enhanced collaborative working, access to accu­rate and up-to-date medical information and clearer lines of communication between health professionals and hostel workers could result in better outcomes for this population in terms of having a voice that is heard, being offered choices regarding care options, and being treated with the same dignity and respect that the rest of the population has come to expect at the end of life

Length of publication: 9 pages

Some important notes: This article is available in full text to all NHS Staff using Athens, for more information about accessing full text follow this link to find your local NHS Library

 

Marie Curie: Our Rapid Response Service is helping to reduce hospital admissions in Northern Ireland

Source: Marie Curie 2015

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Date of publication: April 2015

Publication type: News

In a nutshell: Significant investment in the Marie Curie Rapid Response Service in Northern Ireland has led to more people being able to access the service and helped reduce hospital admissions.

Length of publication: 1 page

 

End of Life Care: Fifth report of Session 2014-15

Source: House of Commons Health Committee

Follow this link for the full report

Date of publication: March 2015

Publication type: Parliamentary report

In a nutshell: This report looks at the state of End of Life Care since the Independent Review of the Liverpool Care Pathway. This report makes a number of recommendations for improvement.

Length of publication: 54p.

 

Equity in the provision of palliative care in the UK: Review of evidence

Source: Personal Social Services Research Unit

Follow this link for the full report

Date of publication: April 2015

Publication type: Report

In a nutshell: Personal Social Services Research Unit London School of Economics and Political Science (LSE) was commissioned by Marie Curie to explore the evidence on equity in palliative care and to consider the economic implications of extending palliative care to those currently under-served.

Length of publication: 148p.

 

Every moment counts: A narrative for person-centred coordinated care for people near the end of life care

Source: National Council for Palliative Care; National Voices

Follow this link for the full document

Date of publication: March 2015

Publication type: Narrative document

In a nutshell: Every Moment Counts: a narrative for person centred coordinated care for people near the end of life sets out how good, coordinated – or integrated – care looks to people near the end of life and is written from their point of view.

Length of publication: 26 pages

 

Living and dying with dementia in England: Barriers to care

Source: Marie Curie Cancer Care and Alzheimer’s Society

Follow this link for the report

Date of publication: December 2014

Publication type: Report

In a nutshell: A new report from Marie Curie and Alzheimer’s Society today reveals the barriers that prevent people with dementia from accessing high-quality care at the end of life in England

Living and Dying with Dementia – Barriers to Care addresses the often overlooked final stage of dementia – a progressive, terminal illness. It highlights that dementia is often not recognised as a terminal diagnosis, which can lead to poor access to care, inconsistent quality of care and inadequate pain management.

Length of publication: 24p.

 

Patients dying at home often ‘scared and alone’ without 24/7 support

Source: ehospice.com

Follow this link for the webpage

Date of publication: October 2014

Publication type: Web article

In a nutshell: Sue Ryder has launched a new campaign to draw attention to the national lack of comprehensive 24/7 expert support services for people who are dying and their loved ones that care for them. According to research by Sue Ryder, only 8% of clinical commissioning groups in England provide comprehensive 24/7 expert emotional support, practical advice and coordination for the dying, their carers and families. This lack of provision leaves people scared, alone and desperate for help – without anywhere immediate and appropriate to turn to outside of 9-5 working hours.

Length of publication: 1 page

 

Listening to dying people in Wales

Source: Marie Curie Cancer Care

Follow this link for the full report

Date of publication: April 2014

Publication type: Report

In a nutshell: Each individual will have personal wishes about where they wish to be cared for and where they wish to die.  They will also have many non-healthcare needs which impact on their well-being just as much as their healthcare does. In a new report, Listening to Dying People in Wales, Marie Curie Cancer Care looks at the methods currently in place for gathering experience feedback from terminally ill people and their families and carers. The report argues that if current services are to do the best for dying people in Wales they must find out about people’s experiences of the care they received at the end of their lives. Only then will those that plan and deliver services be able to make informed decisions based upon people’s needs.

Length of publication: 14 pages

 

Listening differently to users: Assessing the feasibility and the value of real-time reporting of the experience of people receiving care in the last year of life

Source: Marie Curie Cancer Care

Follow this link for the full report

Date of publication: April 2014

Publication type: Report

In a nutshell: This paper reports on the findings of a Real Time Reporting pilot project developed by the National End of Life Care Programme (now part of the NHS Improving Quality), Marie Curie Cancer Care and Help the Hospices working in partnership. The aim of the project was to find more effective ways to collect, analyse and present data on the experience of people receiving care in their last year of life, as a basis for service improvement.

Length of publication: 30 pages

Reduction in symptoms for homebound patients receiving Home-based Primary and Palliative Care

Source: Journal of Palliative Medicine

Follow this link for the abstract

Date of publication: Online ahead of print: 8 June 2013

Publication type: Article

In a nutshell: The purpose of this study was to determine whether high symptom burden decreases following Home-Based Primary and Palliative Care (HBPC) enrollment. The article concludes that in a chronically ill population of urban home-bound, patient symptoms can be successfully managed in the home. The authors recommend future work should continue to explore symptom assessment and management over time for the chronically ill home-bound.

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.

 

Palliative and end of life care for black, Asian and minority ethnic (BAME) groups in the UK

Source: Marie Curie

Follow this link for the full report

Date of publication: June 2013

Publication type: Report

In a nutshell: This Public Health England commissioned report highlights the growing need to make end of life care more accessible and appropriate for minority ethnic groups. It highlights that the end of life care needs of BAME communities are varied, growing, and despite examples of good practice, overall not adequately met. It recommends that service providers and commissioners recognise the growing need for improved end of life care for BAME communities and that they learn from examples of best practice, some of which are highlighted in the report.

Length of publication: 79p.

Future needs and preferences for hospice care: challenges and opportunities for hospices

Source: Help the Hospices Commission

Follow this link for the report

Date of publication:April 2013

Publication type: Report

In a nutshell: This report considers how hospices need to develop over the next three to five years to be prepared for the challenges facing them in the future, challenges including building new partnerships and developing stronger business acumen to working more closely with care home and doing more to value carers.

Length of publication: 57p

Death and dying: Understanding the data. Executive summary

Source: Marie Curie

Follow this link for the report

Date of publication: February 2013

Publication type: Report

In a nutshell: Death and Dying brings together data previously published elsewhere, much of which is available via the Marie Curie End of Life Care Atlas. The Atlas has been developed to help Clinical Commissioning Groups (CCGs) and others identify gaps and differences of experiences across all end of life care services. It enables commissioners to see how their area compares, to address unmet needs and improve care for all.

Length of publication: 4 pages

Acknowledgement: We need to refocus end of life care as a health priority by Dr Phil McCarvill