Communication between family carers and health professionals about end-of-life care for older people in the acute hospital setting: a qualitative study

September 7, 2015

Source: BMC Palliative Care 2015

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Date of publication: August 2015

Publication type: Article

In a nutshell: This paper focuses on communication between hospital staff and family carers of patients dying on acute hospital wards, with an emphasis on the family carers’ perspective. The results of this research indicate that carers’ experience of the end of life care of their relative was enhanced when mutual understanding was achieved with healthcare professionals. However, some carers reported communication to be ineffective. They felt unsure about what was happening with their relative and were distressed by the experience of their relative’s end of life care. In conclusion, it is suggested that establishing a concordant relationship, based on negotiated understanding of shared perspectives, can help to improve communication between healthcare professionals and family carers of their patients.

Length of publication: 14 pages


Commissioning home care for older people

July 9, 2014

Source: Social Care Institute for Excellence

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Date of publication: June 2014

Publication type: Guidelines

In a nutshell: This guide captures the latest research findings on this important and emerging area of social care. It also provides some practice examples of good work in this area. The guide is aimed at health and social care commissioners of home care services for older people with complex needs.

Length of publication: 40 pages


What about end of life care? Mapping England’s Health & Wellbeing Boards’ vision for dying people

December 21, 2012

Source: National Council for Palliative Care

Follow this link for the full-text report

Date of publication: November 2012

Publication type: Report

In a nutshell: This report calls on Health and Wellbeing Boards to join up support for people approaching the end of life, based on research from September-October 2012, in which the boards’ emerging strategies were reviewed by NCPC.  NCPC have produced a What about end of life care? Action Sheet to help boards consider end of life care and support – visit for more information.

Length of publication: 8 pages

Older people living alone at the end of life in the UK: research and policy challenges

April 26, 2012

Source: Palliative Medicine,  2011, vol./is. 25/6(650-657), 0269-2163 (2011)

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Date of publication: September 2011

Publication type: Article

In a nutshell: In light of recent emphasis on place of death in UK policy, this article reviews some of the challenges faced by older people who live alone towards the end of life.  The implications of issues that impact on opportunity to achieve their preferred place of death are addressed including, finances, support mechanisms and the home environment.

Length of publication: 8 pages

Some important notes: This article is available in full text to all NHS Staff using Athens, for more information about accessing full text follow this link to find your local NHS Library 

Acknowledgement: BNI 

An exploration of palliative care provision in Scottish care homes

January 27, 2012

British Journal of Nursing vol. 21(1) p 8 – 15

Follow this link for the abstract

Date of Publication:  January 2012

Publication Type: Article

In a nutshell: This paper explores the suggestion that there is an imbalance between the ideal and the actual palliative care provision for some older people living and dying in care homes in Scotland. Successive studies demonstrate that care home residents are increasingly frail and disabled. Many experience challenging physical and psychosocial symptoms which could benefit from a palliative approach to alleviate suffering and promote comfort. However, palliative needs for people with non-malignant conditions, such as dementia, can be complex, and not easily identified or managed.

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library

Involving older people in commissioning: more power to their elbow?

December 19, 2011

Source: Joseph Rowntree Foundation

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Date of publication: December 2011

Publication type: Report

In a nutshell: This research set out to investigate what happens when older people are given the opportunity to shape service commissioning and delivery. The study also raises wider questions about the impact of their involvement, particularly whether it can change the nature of local power relations in the long term.

Length of publication: 76 pages

Acknowledgements: National End of Life Care Programme

End-of-life care in the community: attaining a critical balance

November 21, 2011

Source:  British Journal of Community Nursing 2011, v.16(11) p522

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Date of publication: November 2011

Publication type: Article

In a nutshell: The recently published report by the Care Quality Commission (CQC, 2011) Dignity and Nutrition for Older People, makes a number of negative observations about poor quality of care in the 100 hospitals they inspected. The report concluded that many hospitals are failing to meet basic needs of older people. It is important that we nurses provide essential care, as there is nothing basic about patients’ needs, wishes and aspirations at the end of their lives.

Length of publication: 1 page

Some important notes: Contact you local health library to obtain a copy of this article. Follow this link to find you local health library