Transferring patients home to die: what is the potential population in UK critical care units?

March 9, 2017

Source: BMJ Supportive & Palliative Care 2017; 7: 98-101

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Date of publication: March 2017

Publication type: Short report

In a nutshell: This retrospective cohort study was undertaken to describe the size and characteristics of the critical care population who could potentially be transferred home to die if they expressed such a wish.

Length of publication: 4 pages

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Development of the Carers’ Alert Thermometer (CAT) to identify family carers struggling with caring for someone dying at home: a mixed method consensus study

May 6, 2015

Source: BMC Palliative Care 2015 14; 22

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Date of publication: May 2015

Publication type: Research article

In a nutshell: The aim of the study was to explore what professionals and carers of patients with cancer and advanced progressive illness, in their last year of life, find burdensome and to develop an alert system for use by non-specialist staff. A mixed-method, multi-phased, consensus study sequentially utilising qualitative and quantitative data to develop and pilot the Carers’ Alert Thermometer (CAT). 245 people participated in the study across a range of health and social care settings in the North West of England (2011–2014). The results identified a number of key domains for inclusion in the CAT. The 8 domains fit within two overarching themes of the reported carer experience; the support needed by the carer to provide care and the support needed for the carer’s own health and well-being. The resultant CAT is an evidence-based alert thermometer consisting of 10 questions, guidance on the possible actions for each alert and space for an action plan to be jointly agreed by the assessor and carer. Preliminary piloting of the CAT has shown it to be valued, fit for purpose and it can be administered by a range of personnel. In conclusion, the CAT enables the identification of current and potential future needs so a proactive approach can be taken to supporting the carer as their role develops over time, with a view to enhancing their well-being and preventing avoidable hospital admissions; ultimately supporting patient choice to remain in their own home.

Length of publication: 21 pages

 


Exploring the cost of care at the end of life

October 2, 2014

Source: The Nuffield Trust

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Date of publication: September 2014

Publication type: Research report

In a nutshell: This report explores the cost of care at the end of life’ uses anonymised person-level datasets to estimate the costs at the end of life relating to GP contacts, community nursing, local authority-funded social care, hospice and hospital care. The research also explores whether reduced hospital activity and costs at the end of life were likely to be offset by increased care costs in other health and social care settings using the Marie Curie home-based palliative care nursing service. The results suggest that cost savings might be available if community-based support were made more widely available to help people to die in their own homes, where that was their preference.

Length of publication: 31p.

 


Dutch model offers new approach to home care

August 13, 2014

Source: Australian Ageing Agenda

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Date of publication: August 2014

Publication type: Web article

In a nutshell: The Buutzong model of nursing, where small teams of nurses provide home care services, supported by technology and with minimal administrative nursing, is spreading internationally. Under the model, small teams of up to 12 nurses work in close collaboration with patients, doctors, allied health professionals and informal community networks to support the patient.

While the costs per hour are higher from employing registered nurses, savings are made through lower overhead costs and a reduction in the overall number of care hours required per client.

Acknowledgement: ehospice


National Survey of Bereaved People (VOICES), 2013

July 10, 2014

Source: Office for National Statistics

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Date of publication: July 2014

Publication type: Statistical Report

In a nutshell: Key findings from the 2013 National Survey of Bereaved People suggest:

  • Overall quality of care has not changed significantly between 2011, 2012 and 2013.
  • Quality of care was rated significantly lower for people who died in a hospital, compared to people dying at home, in a hospice or care home.
  • For those dying at home, the quality of coordination of care was rated significantly lower in 2013 compared to 2012.
  • The dignity and respect for patients shown by hospital nurses and hospice nurses has increased between 2011 and 2013.
  • Pain is relieved most effectively in the hospice setting (62%) and least effectively at home (18%).
  • Only one third of people (35%) who express a preference to die at home, actually die at home.

Length of publication: 24 pages

 


Commissioning home care for older people

July 9, 2014

Source: Social Care Institute for Excellence

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Date of publication: June 2014

Publication type: Guidelines

In a nutshell: This guide captures the latest research findings on this important and emerging area of social care. It also provides some practice examples of good work in this area. The guide is aimed at health and social care commissioners of home care services for older people with complex needs.

Length of publication: 40 pages

 


Dying at home: A qualitative study of the perspectives of older South Asians living in the United Kingdom

February 10, 2014

Source: Palliative Medicine 2014 v.28(3), p.264-272

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Date of publication: March 2014

Publication type: Article

In a nutshell: This article aims to explore beliefs, attitudes and expectations expressed by older South Asians living in East London about dying at home. Findings suggest that older people of South Asian ethnicity living in East London perceive home as more than a physical location for dying relatives. They make efforts to adhere, and also adapt, to important social and cultural values relating to death and dying as part of the wider challenge of living in an emigrant society.

Length of publication: 8 pages

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.