Reflecting on palliative care for children, young people and their families: a revised model

Source: International Journal of Palliative Nursing 2022, 28 (10): 482-490

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Date of publication: October 2022

Publication type: Research Article

In a nutshell: This article looks at an updated and specialised reflective model for use in children’s palliative care. Reflective models are usually used to reflect on practice with the aim being quality improvement and also to help practitioners explore difficult aspects of care with families.

Length of publication: 7 pages

How can we improve the experiences of patients and families who request medical assistance in dying? A multi-centre qualitative study

Source: BMC Palliative Care 2021, 20: 185

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Date of publication: December 2021

Publication type: Article

In a nutshell: This article looks at a longitudinal study carried out in Canada over a period of 5 years in order to find out patient and family perspectives of quality of care for medical assistance in dying.

Length of publication: 12 pages

Living and dying with dementia in Scotland: Barriers to care

Source: Marie Curie Cancer Care

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Date of publication: February 2015

Publication type: Report

In a nutshell: This report addresses the challenge of improving care and support available to people with dementia at the end of life as well as their families. By focusing on the barriers, improvements can be made in care and can ensure that all those who might benefit from it receive it.

Length of publication: 24p.

 

Listening to dying people in Wales

Source: Marie Curie Cancer Care

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Date of publication: April 2014

Publication type: Report

In a nutshell: Each individual will have personal wishes about where they wish to be cared for and where they wish to die.  They will also have many non-healthcare needs which impact on their well-being just as much as their healthcare does. In a new report, Listening to Dying People in Wales, Marie Curie Cancer Care looks at the methods currently in place for gathering experience feedback from terminally ill people and their families and carers. The report argues that if current services are to do the best for dying people in Wales they must find out about people’s experiences of the care they received at the end of their lives. Only then will those that plan and deliver services be able to make informed decisions based upon people’s needs.

Length of publication: 14 pages

 

Evaluation of the introduction of an advanced care plan into multiple palliative care settings

Title:  Evaluation of the introduction of an advanced care plan into multiple palliative care settings

Source:   International Journal of Palliative Nursing 2009, Vol 15, 11, p554-561.

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Date of publication:  November 2009

Publication type:  Article

In a nutshell:  The authors describe and evaluate the implementation of advanced care plans into community and in-patient settings.  They describe the usefulness of the plans and the positive impact in terms of patients being able to successfully choose their place of death.   In addition, the impact of the plans on clinical practice and on communications between professionals and between professionals and their patients and their families is shown to have effectively led to patient empowerment however this is limited by the availability of resources.  The benefits of embedding evaluation into new initiatives are discussed.

Length of publication: 8 pages.

Acknowledgement:  EMBASE

ACT Training Grants Available

Source: ACT website

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Publication type: Website 

 In a nutshell: National children’s palliative care charity, ACT has re-opened Children’s Palliative Care Training Grants programme to allow professionals, carers and family members looking after children with life-limiting and life-threatening conditions to access training opportunities.   The grant programme is funded by The True Colours Trust and aims to provide grants of up to £250 to individuals and agencies who would otherwise not be able to access specialised training in the field of children’s palliative care.  Applications may be submitted up to 28th August 2009.  For full details of the grants and how to apply click here.

Palliative Care 1: principles of palliative care nursing and end of life care

Title: Palliative Care 1: principles of palliative care nursing and end of life care

Author: Robert Becker

Source: Nursing Times 2009 Vol.105 No.13 pgs 14-16

In a nutshell: The first in a three part series examining the diversity and challenges inherent in nurses’ contribution to palliative care. The art and science of caring for the dying and their families has long been recognised as an immensely demanding and rewarding part of health and social care. For nurses, it is central to the values and principles that underpin clinical practice.

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Palliative Care 2: exploring the skills that nurses need to deliver high quality care

Title:  Palliative Care 2: exploring the skills that nurses need to deliver high quality care

Author: Robert Becker

Source: Nursing Times 2009 Vol.105 No.14 pgs 18-20

In a nutshell:  The second of this three-part series on palliative care outlines the skills nurses need to deliver effective care and explores the evidence base to support the diverse range of knowledge, attitudes and skills needed to provide nursing care for people at the end of life.

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Palliative Care 3: Using palliative nursing skills in clinical practice

Title: Palliative Care 3: Using palliative nursing skills in practice

Author: Robert Becker

Source: Nursing Times Vol. 105 No. 15 p18-21

Year of Publication: 2009

In a nutshell: This article explores the practice-based reality of using the palliative approach in multiple settings and the challenges in such care.

Acknowledgements: Nursing Times

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