No regrets: how talking more openly about death could help people die well

May 17, 2017

Source: Macmillan Cancer Support

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Date of publication: April 2017

Publication type: Report

In a nutshell: This report by Macmillan Cancer Support finds that more than 62,000 people die of cancer in hospitals each year in the UK despite a significant majority stating that they would like to die at home. It reveals the challenging obstacles that people face when discussing death and highlights the need for better communication to help people plan for their final days.

Length of publication: 15 pages



Transferring patients home to die: what is the potential population in UK critical care units?

March 9, 2017

Source: BMJ Supportive & Palliative Care 2017; 7: 98-101

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Date of publication: March 2017

Publication type: Short report

In a nutshell: This retrospective cohort study was undertaken to describe the size and characteristics of the critical care population who could potentially be transferred home to die if they expressed such a wish.

Length of publication: 4 pages

Care after death: Registered nurse verification of expected adult death (RNVoEAD) guidance

January 10, 2017

Source: Hospice UK

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Date of publication: December 2016

Publication type: Supplementary guidance

In a nutshell: A key publication for the different professionals involved in care for people just before and after death has been updated to include additional guidance for Registered Nurses on the verification of expected deaths. The supplementary guidance is aimed at providing greater clarity on the legal requirements for Registered Nurses about the verification of expected deaths. The resource includes guidance on how to verify an expected death and also new competencies to support training to carry out this important aspect of care.

Length of publication: 11 pages

Place of death in children and young people with cancer and implications for end of life care: a population-based study in England, 1993–2014

October 18, 2016

Source: BMC Cancer 2016 Sep; 16 (727)

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Date of publication: September 2016

Publication type: Journal Article

In a nutshell: This study, funded by Marie Curie, looks at how the place of death in children and young people with cancer has changed over the period from 1993-2014, following a number of national initiatives to improve end-of-life care since the late 1990s. The study aims to inform evidence-based policy-making and service development.

Length of publication: 15 pages

Successful launch of North Manchester Macmillan Palliative Care Support Service

November 4, 2015

Source: Pennine Acute Hospitals NHS Trust

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Date of publication: October 2015

Publication type: Press release

In a nutshell: The North Manchester Macmillan Palliative Care Support Service (NMMPCSS) was launched September 21 2015. The £560k service is part of the Macmillan Cancer Improvement Partnership (MCIP) and has been developed through a partnership between Macmillan Cancer Support, the Manchester Clinical Commissioning Groups, The Pennine Acute Hospitals Trust, and St Ann’s Hospice. The service provides

  • Round-the-clock telephone advice, as well as visits and care in the home;
  • Dedicated professionals working together with patients and carers – seven days a week from 8am to 8pm
  • An open referral system for patients, carers and professionals. (Patients can refer themselves to the service)
  • Help with managing problems such as pain, sickness, breathlessness, and psychological and emotional support
  • Ways for people to talk about what is important to them in their care
  • Extra help at home when things are difficult, bringing support to carers


Is dying in hospital better than home in incurable cancer and what factors influence this? A population-based study

October 9, 2015

Source: BMC Medicine 2015, 13:235

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Date of publication: October 2015

Publication type: Article

In a nutshell: This study aims to determine the association between place of death, health services used, and pain, feeling at peace, and grief intensity.  The authors determined factors influencing death at home, and associations between place of death and pain, peace, and grief. Findings suggest that dying at home is better than hospital for peace and grief, but requires a discussion of preferences, GP home visits, and relatives to be given time off work.

Length of publication: 14 pages


Glasgow and Lothian Partnership Case Study: Getting people home with the support they need

October 7, 2015

Source: Marie Curie

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Date of publication: September 2015

Publication type: Case Study

In a nutshell: The Marie Curie Fast-track Service offers short day and evening visits at home to provide health and personal care to people living with a terminal illness in Glasgow and Lothian. The service is for people nearing the end of their lives who are at risk of admission as well as those in hospital needing more care before discharge.

Length of publication: 2 pages