Successful launch of North Manchester Macmillan Palliative Care Support Service

Source: Pennine Acute Hospitals NHS Trust

Follow this link for the fulltext press-release

Date of publication: October 2015

Publication type: Press release

In a nutshell: The North Manchester Macmillan Palliative Care Support Service (NMMPCSS) was launched September 21 2015. The £560k service is part of the Macmillan Cancer Improvement Partnership (MCIP) and has been developed through a partnership between Macmillan Cancer Support, the Manchester Clinical Commissioning Groups, The Pennine Acute Hospitals Trust, and St Ann’s Hospice. The service provides

• Round-the-clock telephone advice, as well as visits and care in the home;
• Dedicated professionals working together with patients and carers – seven days a week from 8am to 8pm
• An open referral system for patients, carers and professionals. (Patients can refer themselves to the service)
• Help with managing problems such as pain, sickness, breathlessness, and psychological and emotional support
• Ways for people to talk about what is important to them in their care
• Extra help at home when things are difficult, bringing support to carers

 

Current advance care planning practice in the Australian community: an online survey of home care package case managers and service managers

Source: BMC Palliative Care 2015 14: 15

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Date of publication: April 2015

Publication type: Research article

In a nutshell: In Australia many community aged care clients receive services through Home Care Package (HCP) programs. This study aimed to explore current attitudes, knowledge and practice of advance care planning among HCP service managers and case managers. This survey showed low organisational ACP systems and support for case managers and a lack of a normative approach to ACP across Australian HCP services. As HCPs become more prevalent it is essential that a model of ACP is developed and evaluated in this setting, so that clients have the opportunity to discuss and document their future healthcare wishes if they choose to.

Length of publication: 7 pages

 

What’s important to me: a review of choice in end of life care

Source: Choice in End of Life Care Programme Board

Follow this link for the full report

Date of publication: February 2015

Publication type: Report

In a nutshell: The independently led Review of Choice in End of Life Care has provided advice to Government which includes: establishing a ‘national choice offer’ focused on individual’s end of life care needs by April 2020; providing an additional £130 million funding for end of life health and social care services; establishing 24/7 community end of life care by 2019 in all areas implementing shared electronic end of life care records by April 2018 in all areas; and a named responsible senior clinician for all people approaching the end of life.

Length of publication: 72p.

 

 

 

Every moment counts: A narrative for person-centred coordinated care for people near the end of life care

Source: National Council for Palliative Care; National Voices

Follow this link for the full document

Date of publication: March 2015

Publication type: Narrative document

In a nutshell: Every Moment Counts: a narrative for person centred coordinated care for people near the end of life sets out how good, coordinated – or integrated – care looks to people near the end of life and is written from their point of view.

Length of publication: 26 pages

 

End of life care in the community: the impact of poor coordination

Source: ehospice.com

Follow this link for the website

Date of publication: February 2015

Publication type: Blog

In a nutshell: The author refers to her friend’s terminal phase of her disease, highlighting how poor communication and coordination of care can make spending your lasts weeks and months at home a stressful and unhappy experience for everyone involved.

Length of publication:  1 page

Listening to dying people in Wales

Source: Marie Curie Cancer Care

Follow this link for the full report

Date of publication: April 2014

Publication type: Report

In a nutshell: Each individual will have personal wishes about where they wish to be cared for and where they wish to die.  They will also have many non-healthcare needs which impact on their well-being just as much as their healthcare does. In a new report, Listening to Dying People in Wales, Marie Curie Cancer Care looks at the methods currently in place for gathering experience feedback from terminally ill people and their families and carers. The report argues that if current services are to do the best for dying people in Wales they must find out about people’s experiences of the care they received at the end of their lives. Only then will those that plan and deliver services be able to make informed decisions based upon people’s needs.

Length of publication: 14 pages

 

End-of-life-care after the Liverpool Care Pathway

Source: British Journal of Community Nursing 2014, v.19(5) pp 250 – 254

Follow this link for the abstract

Date of publication: May 2014

Publication type: Article

In a nutshell: This article presents a review of key issues around caring for people in the last hours and days of life. The aim is that community nurses will be able to support patients and families, and to provide and explain decisions and interventions to promote comfort and dignity based on current evidence.

Length of publication: 5 pages

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.

 

Hospices in the UK are losing out under complex new commissioning and contracting arrangements

Source: International Journal of Palliative Nursing

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Date of publication: July 2013

Publication type: Article

In a nutshell: Between March and May of this year Help the Hospices undertook a survey of our member hospices in England, focussed on new commissioning and contracting arrangements between the recently established CCGs and hospices for the 2013/14 financial year. They found that commissioning and contracting have become much more complicated under these new arrangements, which are hindering hospices and saddling many with extra bureaucracy and costs. As well as additional costs arising from increased bureaucracy, some hospices have incurred significant costs as a result of delays in CCGs agreeing funding arrangements. The financial impact of the new commissioning and contracting arrangements on all hospices in England, primarily from new data-reporting requirements under the standard NHS contract, is conservatively estimated to be at least £3.2 million, although the true costs are likely to be much higher.

Length of publication: 2 pages

Some important notes: This article is available in full text to all NHS Staff using Athens. For more information about accessing full text, follow this link to find your local NHS Library

 

New end-of-life care group planned

Source: Health Service Journal

Follow this link for the abstract

Date of publication: August 2013

Publication type: Article

In a nutshell: The government is expected to announce a new coalition to examine end-of-life care in response to the scrapping of the controversial Liverpool Care Pathway (LCP). The alliance will provide guidance on what needs to occur in place of the LCP and will work with end-of-life healthcare professionals, patients and families on what good care means. It will also consider how to implement recommendations around the accountability and responsibility of individual clinicians, out-of-hours decisions, nutrition and hydration and communication with the patient and their relatives or carers.

Length of publication: 1p.

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library.

Acknowledgement: Insert text here

Future needs and preferences for hospice care: challenges and opportunities for hospices

Source: Help the Hospices Commission

Follow this link for the report

Date of publication:April 2013

Publication type: Report

In a nutshell: This report considers how hospices need to develop over the next three to five years to be prepared for the challenges facing them in the future, challenges including building new partnerships and developing stronger business acumen to working more closely with care home and doing more to value carers.

Length of publication: 57p

Cultural considerations in planning palliative and end of life care

Source: Palliative Medicine v.26(3) p195-6

Follow this link for the abstract

Date of publication: April 2012

Publication type: Article

In a nutshell: This article examines the  cultural dimensions of palliative care and considers that in the future, cultural factors are going to play just as strong a part in shaping end-of-life care around the world as will policies, professional ideologies and service configurations. Putting culture at the centre of palliative care will be a key determinant of efficacy and sustainability.

Length of publication: 2 pages

Some important notes: Please contact your local NHS Library for the full text of the article. Follow this link to find your local NHS Library

The future of UK palliative care: reflections on the recommendations of the Palliative Care Funding Review

Source: International Journal of Palliative Nursing Vol. 17(7) p316-319

Follow this link for the full text article

Date of publication: July 2011

Publication type: Article

In a nutshell: The recommendations of the Palliative Care Funding Review have potentially fundamental implications for the future of palliative care delivery in the UK. This article looks at the reasons why a new funding system is needed; defining the state’s responsibility for meeting palliative and end-of-life care needs; and implementation of the new funding system.

Length of publication: 4 pages

Some important notes: An NHS Athens password is required to access this article online. Follow this link to register for Athens.

Transferring service provision from a Primary Care Trust to a charity: what needs to be considered?

Source: International Journal of Palliative Nursing v.17(8), p370-3

Follow this link for an abstract of the article

Date of publication: August 2011

Publication type: Article

In a nutshell: This article examines the transfer of specialist palliative care services from NHS Berkshire West to Sue Ryder. The Department of Health’s initiative Transforming Communty Services provided the framework for transfer, which enabled the PCT to focus on commissioning rather than both providing and commissioning services. The complexities and challenges of transferring a service from the NHS to the voluntary sector are examined.

Length of publication: 2 pages

Some important notes: Contact your local health Library for a copy of this article. Follow this link to find your local health library

Sue Ryder Care takes on NHS role

Source: getreading

Follow this link to read the full article

Publication Date:April 2011

Publication Type: Web article

In a nutshell: Berkshire West Primary Care Trust transferred all specialist palliative care services to Sue Ryder on April 1, as part of the Department of Health’s Transforming Community Services.

Acknowledgements: Topix Local News